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georgie1111

Hearing Loss and Tinnitus

33 posts in this topic

Hi Shelley,

 

Yes I did try the batteries both ways plus side up plus side down and still nothing. I think you could be right that the batteries have lost their ooomp even though the packet has a date on it 5/2012. I will buy new ones on Monday as well as make an appointment with the hearing aide lady (not sure if she a doctor or not.)

 

Tonight the ringing is really bad so I am flat out trying to embrace it, acknowledge it, accept it then just let it go. It's so hard as when you need your mind power to over come a symptom it is extra hard when the problem is actually in the 'engine room' !! But I do realise now that I only have two choices, one being to let it consume me and drown in the emotions or use mind power to deal with it. So as hard as it is I prefer the latter choice so I am plugging away quietly.

 

About yours and Jeannie's tinnitus going away (oh what a beautiful thought!) does that mean that you're cured of it ? I thought the 'rule of thumb' was the less hearing you have the louder the tinnitus? So happy for you both that you are free of it. I can't wait for the day that I too can boast that I hear silence yay!!

 

Hugs,

 

"G"

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Hi Georgie,

 

Yeah, I guess Shelley and I are becoming cured of it in the respect that we are hearing less of everything. :lol: I like the idea of hearing silence. It sounds very calm and peaceful.

 

Today, so far, I've heard our ancient border collie barking at 5AM: Get up you lazy louts, I want to go out and herd sheep! And at 5:15 I heard her barking again: Open this door, I want to come back in, there aren't any sheep out here and I want to go back to sleep! She's not a continuous barker unless it's someone at the door, she barks one sharp bark, waits a bit, then repeats the single sharp bark. The interval was carefully calculated for the maximum annoyance value.

 

Ah, and the other thing I heard (amazingly clear) was my hubby mumbling something about [expletive deleted] old dog!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello All

 

I'm coming in late on this one but I had to join in, alas you are all going to think I am raving mad though. I have had tinnitus since I was a child, although never technically diagnosed I now realise what the white noise in the ears is, the whooshing sounds, the whining, the ringing so loud I often ask my husband if he can hear it in order to determine whether the sound is "real" or not. I often have to use ear plugs because of snoring husband and/or cat and it makes the tinnitus worse but here's where you'll think I am mad...I couldn't sleep without my tinnitus, couldn't stand the sound of silence!I have had it so long I wouldn't know what to do without it. I guess I have become institutionalised to tinnitus!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Jeannie,

 

So you have a border collie, eh? They are such a beautiful dog (except when barking at 5.00am). :lol:

 

We had a border collie he was just gorgous but being 'city folks' his instinct to round everything up was focused on cars so whenever cars drove past there was our old dog trying to round them up. It was actually scary to watch as I always feared he would go under the wheels. Nothing we did ever deterred him from rounding up cars. Happy to say he lived a long happy life and brought us much joy. I see that Jo has an avatar with a black and white spaniel; so cute with their floppy ears and big brown eyes , my last dog was a Pomeranian. She was the dearest little being. She filled me with joy on a daily basis. She died from epilepsy almost 8 years ago and I still miss her. So yeh your talking with a dinky die dog lover here, even if they do bark at 5.00am. :lol:

 

"G"

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Hi Amanda,

 

My first response to your post saying you couldn't live without tinnitus was "What"!! :lol: However, I'm glad you posted that as after I got over the "What!" response I realised that what you said actually backed up what Shelley was saying about acknowleging it, accepting it and letting it go, so you are proof that you can 'get to a place' of peace living with tinnitus. I would prefer it to just GO AWAY but if it is here to stay I can only hope that I can get to where you are and think of it as normal.

 

Hugs "G"

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Hello "G"

 

Yes it is possible to embrace the madness! :lol:

 

I thought your comment "...it is extra hard when the problem is actually in the 'engine room' !! " very interesting. I was a migraine sufferer for years, particularly badly for the first two years that I had scleroderma, and the fact that the pain was "in the engine room" made it harder to try and content with. In those first two years I would actually have elected to be rid of the migraines in preference to the scleroderma if I could have chosen to be rid of only one ailment. Yep, they really were that bad.

 

Be encouraged that we can learn how to function with anything, not just despite but with delight. I reckon that if we can live well with scleroderma we can live well with anything. Maybe finding a tinnitus forum might be helpful, I assume there are some and they may have insider tips on how to deal with it.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Yes I have no problems imagining why you would choose to be free of migraines over sclero!! I'm sure anyone who has had a migraine would say the same.

 

I manage all aches and pains caused by sclero not with pain meds but with visulisations (could almost say self hypnosis) and I get great results, but I have never been able to master self help via visualisations when the symptoms are in the head area, so my tinnitus has always won the battle between me coping and not coping and unfortunately there is no magic pill you can take to manage it so I have been a 'victim of tinnitus' (physically, mentally and emotionally) since it started a year ago. But after talking with folks here it truly has empowered me to try harder with the 'mind power' as it really hit home that with tinnitus there are only two choices; allow it to wear you down and drown in the emotional cess pool of agitation and frustration or mentally rise up to the challange, acknowledge it, accept it won't go away, embrace it , then let it go , learning that and knowing others have done it has truly changed my attitude and that change of attitude is, as I see it, the first step to managing tinnitus; for the first time I feel like I am now in control of it not the other way around. What a great idea to look for a tinnitus forum!! I've learned some more valuable info; thanks Amanda. "G"

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Just thought I would tell you how the story of hearing aides /tinnitus unravelled ....

 

I picked up my hearing aids from the technician who fixed them I noticed he put new pods on them eeeeeek ! I told him I didn't want the pods on that they are intolerable and he just said not a problem we can put mini pods on them; he came back with these tiny little pods soooo small but are pod shaped (by the way they are referred to as domes ) and they are terrific, small enough not to give you that 'plugged up' feeling but enough to keep em still; I was so thrilled. So I am now a permanent wearer of hearing aids, I forgot how noisy the world can be, I can now even hear the clocks ticking lol everything I hear sounds so crisp and clear it's wonderful. The best news is it did drop the tinnitus levels to a much more tolerable level; where it's at now I can live with it; can't tell you what a relief it has been. I did go to a tinnitus forum and learned a great deal from that site, all the do's and all the dont's and yes all the dont's I was doing !!! ..... I only have one struggle now ,as a renal patient when my urine output drops under 500 mils for 24 hours I start to get very symptomatic and I have to take lasix and unfortunatly even with hearing aids the buzzzzzzzzzzzzzzzzzzz sound in both ears cranks up a couple notches. My pc nurse said lasix are notorious for causing or aggravating tinnitus but I have to take them every now and then, but at least in between the times where I don't have to take the lasix I do have respite which is heavenly, so I am most grateful .... thanks ladies for guiding me thru that dark passage, I am just so thrilled and relieved to get some relief from the 24/7 sound of buzzzzzzzzzzzzzzzzzzzzzzzzz... "G" :thank-you:

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Hello "G"

 

I am glad you have been able to sort out the hearing aid and as a bonus the tinnitus is better, long may it continue!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi "G",

 

I'm so pleased that you've been able to have your hearing aid problems sorted out and you're getting some relief from the tinnitus. :emoticons-yes:

 

The difference must have opened up a whole new world for you! ;)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Georgie, I'm delighted that you have your hearing aids working again, at long last, and that it is all working out good for you!

 

:emoticon-congratulations:

I'd say it calls for a Sclero Happy Dance, and invite anyone and everyone to dance along with me!

 

:emoticons-line-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Sclero Happy Dance!!

 

That !was just soooo cute, soooo funny. It sure put a smile on my dial! :VeryHappy:

 

Got an appointment next Wednesday to have the hearing aides tuned up, then after that I will tape them to my glasses and then I'm all done.

The thing that has astonished me most is that since being diagnosed with scleroderma , and as all the symptoms escalated and my health deteriorated, I just took all the changes in my stride.

 

Some ruffled my feathers more than others, but none of the health issues ever reduced me to tears, but that tinnitus did!

 

At the moment the high pitched buzz (on a scale from 1 to 10) would only rank as a 4 maybe. I can tolerate that but when I had that high pitched buzz at 8 or 9 level, and oh my 24/7, with no respite, I really was struggling. I was a mess!

 

So now with tinnitus under control I am one very happy and contented vegemite. My PC nurse also told me that the naprosyn I was taking was also know to aggravate tinnitus, so that has been ditched. Now all is well in OZ Land and I am happy to announce that I am in a much better frame of mind, so good in fact that I too can mentally join in the Happy Scleroderma Dance!

 

:emoticons-line-dance: :thank-you-2: :terrific: THANKS LADIES "g"

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Hi Georgie

 

So pleased that you are now in a much better frame of mind, and doing the Happy Dance!!

 

We are so fortunate to have such wonderful friends posting with heaps of experience.

 

:emoticons-group-hug:

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