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Margaret

Gareth update

28 posts in this topic

My reply dissapeared about half way through. Poof! I wonder how that happens to us occasionally.

 

Anyways, Margaret I am happy to hear that Gareth came through the surgery quite well. Let him know that all your friends here on the ISN fourm think of him often and wish the best for him. I would wish for no pain but that is part and parcel of this disease or life in general I've come to understand.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi, hope Gareth is recovering nicely and that the surgery takes care of his pain.

 

I had gallbladder-like attacks for years, but ultrasounds were always normal. Finally had a HIDA scan which showed dysmotility of the gallbladder, had the cholecystectomy, and never had another attack, thank goodness! Surgeon said my gallbladder was large and filled with sludge. Wasn't diagnosed with sclero til years later, but my rheumatologist thinks the gallbladder dysmotility was an early symptom of the scleroderma.

 

I'm in upstate NY, I personally didn't feel the earthquake, but my husband's workplace sure felt the shaking, they evacuated the building but after inspection, everything seemed okay, without damage to the building or equipment. Hope you didn't bring the earthquakes with you from California! :lol:

 

:emoticons-group-hug: to you and Gareth!

 

red

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Margaret,

 

I know I'm really late jumping in here, but I thrilled that by the time I saw this that Gareth's surgery was successful and that the gallbladder may have been the problem after all.

 

I certainly will keep my fingers crossed that this solves the pain and the fever. My thoughts are with you both!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Margaret

 

I'm late chiming in too but was so glad to follow the thread to see that Gareth made it through the surgery well. I'm wishing for a speedy recovery!


Sending good wishes your way!

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Hi Everyone,

 

It's been 3 weeks since Gareth's gallbladder was removed and the pain is gone. The stitches came out last week by the RN and we will finally talk to the surgeon the end of the month. I guess that's the way he does his post ops....one month later. In the meantime, I have the biopsy report that shows the serosa of the gallbladder had a spot that was hemorrhagic and showing non-specific chronic inflammation. The serosa is the outside of the gallbladder!

 

Also, for 2 months I was told that all his blood work was normal but finally recieved all those copies. His sed rate was up to 20 (4-10 is normal) and his C-Reactive protein was 8 (normal is 0 - 1.0). Both indicate inflammation.

 

I'm happy he's getting back to normal. Now we just have to get him in to the Immunologist and find out about these deficiencies.

 

Thank you all for your thoughts and advice. It's so much appreciated!

 

Take care, Everyone.

 

Margaret

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Margaret,

I'm glad Gareth is pain free

 

:emoticons-group-hug:

 

miocean


ISN Artist

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Well "Mom" you are really on top of things! So glad to hear Gareth is on the "feel better" side of all of this, considering everything.

 

Keeping good thoughts for you both as you continue with getting him on the complete mend, Margaret.

 

Thank you for the update! :emoticons-group-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Margaret,

So pleased to hear Gareth is on the mend so to speak.

 

You have just backed up my theory that we should always remember to get a copy of test results to read at our leisure. Some practitioners say that they can interpret things better than we lay people can, but it doesn't hurt to be able to point out something we think is out of the normal range and ask questions.

 

When my Dad was my age!! (scary eh!) he started feeling unwell and it took about 2 years of him hounding his doctors for answers before they finally decided he had a cancer which by then was terminal. He got all his bloodwork results and kept pointing out that his ESR was abnormal but nobody could decide why. I know this sounds like a back to front argument because in the end the disease beat him, but he kept telling the family to always keep your own records of what is happening. I do that now, and as well, the opinion of medical people, here in NZ at least, is that the results are your property and you are entitled to them.

 

Good on you Mum for keeping on Gareth's case.

 

Best wishes from

Judy T

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Hi Margaret,

 

I'm so pleased that Gareth is feeling much better and not having the horrible pain.

 

It just shows that your instincts were right about the inflammation and hopefully you'll get a satisfactory outcome from his immunologist.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Margaret

 

I am glad Gareth's pain has gone! Funny thing to say about the blood test results when they weren't normal, your instincts were certainly right.

 

Take care and I'm glad Gareth has gone from :sickly: to :woohoo: !


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Margaret,

 

I'm delighted that Gareth is doing so much better and that the issue is finally solved. He sure suffered a long time over it.

 

Is he good enough that we can do a Sclero Happy Dance over it? Well sure any improvement calls for a dance, right?

 

:emoticons-line-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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