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JBG

Anyone have Cervical Stenosis and Scleroderma?

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I have CREST, Lupus and asthma. This past week I was diagnosed with Cervical Stenosis. The neurologist said that it can be from an old injury, I'll be 50 in a couple of weeks, as well as from the scleroderma and Lupus. He is sending me to a neurosurgeon. I have an appointment with one this coming week. The neurologist said the stenosis is severe. I had MRIs taken of my spine. He and the radiologist both said it's not good.

 

Any advice is welcome.

 

Thanks.

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Hi JBG,

 

I'm very sorry to hear that you've been diagnosed with Cervical Stenosis on top of the other health problems that you're suffering with.

 

I'm afraid I can't offer you any first hand advice as I've never heard of Spinal Stenosis and it does sound very painful and unpleasant. I do hope the link I've included and also this other link to Cervical Stenosis will give you some information and help.

 

It's possible that we may have other members who have experienced this debilitating condition and if that's the case, I'm sure they'll be along with some helpful advice.

 

In the meantime, I do hope that you're able to get some relief and that your neurosurgeon can suggest a satisfactory course of treatment.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Well, the another member would be me. :(

 

This past month or so I have been sent to two specialists. The first one ordered x-rays and then an MRI, which I have had, but not the follow-up appointment. The second one has ordered another MRI (tomorrow), a special CT with contrast, and venography (both Tuesday). After his follow-up, I go back to the first fellow. You and I can compare notes as we go on. Here's wishing us both luck!

 

Pain in the neck, isn't it? :P


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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JBG and Jeannie, sorry that you have this to contend with in addition to...everything else! Sometimes you must feel like dart boards...here comes another dart no disease! :lol:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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(Retired) ISN Sclero Forums Assistant Manager

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International Scleroderma Network (ISN)

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I had surgery on my neck last December due to disc degeneration putting pressure on my spinal column along with the growth of bony spurs into to the spinal canal. I had a CT mylogram to help with diagnosis because I couldn't have an MRI scan. Things have improved somewhat since the operation which has relieved pressure on my spinal cord & root nerves, I still get some issues but the neurosurgeon said it was a matter of stopping things from getting worse - worst case scenario would me ending up paralysed due to the pressure. It was all very scary at the time but glad I had it done because of the relief of some of the numbness & tingling / electric shock type pain I used to get from it.

 

I hope things go well for you both. Yet another thing to deal with.

 

Take Care Buttons

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Hi JBG,

 

Not a nice way to start out your 5th decade of life, to be sure :o

 

However, it sounds as though the doctors are on task and I'll sure keep you in my thoughts, with the hope of the pain being alleviated.

 

Jeannie, I think you've had QUITE enough to deal with, as well. Please keep us posted on the findings?

 

Buttons, I'm so happy to read that your procedure turned out as well as it did. I can appreciate how you must have felt prior, though.

Thank you for posting this on this particular thread.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks so much for your replies. I really do appreciate it.

 

Buttons - I was told the same thing as you. If I don't have the surgery, I can become paralyzed from the neck down. I also have the same symptoms, eg. numbness, tingling, etc.

 

What a year it has been for me. I also contracted Valley Fever. What's next?

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Jeannie - Please let us know how you make out with your tests. I see the neurosurgeon on Thursday. All the best to you.

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Thanks, JGB. I'll keep you in my thoughts today. I should have the first of the 2 follow-ups on 01SEP, so I won't have to wait too long for those results, a good thing 'cause I am not a patient person.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Interesting day, not all of it fun. The bilateral venography requires IV contrast material to be given in each arm simultaneously. Fine except one vein after another blew out and each time that happened they had to start the two different position series all over again. You ought to see my arms. The radiologist said the veins looked good, no clots, and, I think no compression. Then off for the CT and more contrast medium. The fellow doing that one asked when I was having the surgery. Huh? Say what?

 

Next fun thing was finding my car in the huge parking facility. (Credit given for exercise today :lol:)

 

Last but not least, after a nap, I woke up with a bright red lumpy rash on my face. Boy am I glad they they pre-medicate me before giving me any contrast medium, could have been nasty.

 

Oh yeah, one more thing - no caffeine till tomorrow. No cuppas is hard to take...


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Oh Jeannie!

 

Still at least that part of the examination is over; perhaps you could start a new fashion with purple (bruised) arms and a bright red lumpy face to match!! :emoticon-dont-know: :lol:

 

I'm glad I'm not the only one who scours the entire car park for my car thinking it's been stolen ("I'm sure I left it here somewhere!") only to remember I'm about two levels out! :rolleyes: :lol:

 

Hopefully you'll soon be able to drown your sorrows with a cup of tea! ;)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi All,

 

I'd never heard if this until three weeks ago, too! I've also just been told I have cervical stenosis which is causing my arms to go so numb I can't drive more than a few minutes before my arms are totally numb. My neck is so painful all the time it gives me a headache.

 

I've been getting strange wet leg sensations when my leg is dry. It has also affecting my balance and other things.

 

I've been seeing my neurologist for monitoring of a syrinx (hernia/cyst) inside my spinal cord. This is separate from the stenosis. (Just my luck!)

 

He thinks surgery on the syrinx is only an option if I get much worse, as the scar tissue could make the cord compression worse, and I'm high risk for non critical surgery due to other overlapping bits and bobs such as diffuse systemic scleroderma, lupus, sarcoidosis, autoimmune hepatitis and type 1 diabetes (among other stuff).

 

 

I love the way everyone on here is so cheerful and can look on the bright side. :emoticons-group-hug: Thank you guys! :VeryHappy:

 

Good luck to everyone else dealing with this pain in the neck we could do without!

 

Deb

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Hi Zeny,

 

I'm sorry you've been having more problems. It seems like it is always something, doesn't it?

 

To answer your question, cervical spondylosis is where there is more than normal wear and tear on the disks of cartilage and the vertebrae in your neck. Cervical stenosis is where either the canal for the spinal cord itself or an opening for a nerve to pass through is narrowed. (It's usually described as cervical spinal stenosis in order to differentiate between it and stenosis of the cervix in women.) It's my understanding that cervical sponylosis can be the cause of cervical stenosis because the disks act as a pad and a spacer between the vertebrae. When they have degenerated past a certain point, the space is narrowed and hey presto! you have a stenosis.

 

Hope you soon feel a lot better!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Deb,

 

It sounds like you are having way too much fun! :lol: I think having the syrinx would probably frighten me the most. It sounds dreadful.

 

It's funny how when a person gets something nobody has ever heard of, there is suddenly hordes of people who either have it or know someone who does. Kind of like scleroderma, eh?

 

Will you keep us all up to date with what you and your doctors decide to do? :emoticons-i-care: Well, you know, we all care!

 

Warm hugs and best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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