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JBG

Anyone have Cervical Stenosis and Scleroderma?

31 posts in this topic

Hello JBG

 

Don't ask "what next" as the question always gets answered and the answer is never nothing!! Speaking here from experience...

 

Hello Zeny

 

Sorry you have been having multiple health issues, it's no fun with one let alone more that one!

 

Hello Deb

 

Long time no hear! Sorry you have yet another health issue as well, I think it's fair to say you had enough already. I certainly hope that you are now taking it more easy and not caring for everybody else? The Scleroderma Society Essex group meets again on Saturday September 17th and it would be great to see you and hubby again.

 

Hello Jeannie

 

Oh my, I am sorry, I am sure "bruised and lumpy" weren't know side effects of your procedure! Hmm they are now!

 

Take care one and all.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Zeny,

 

Oh, I am sorry to hear that you've been having so many health problems over the last few months. It does sound as if if you've really been suffering. :(

 

Perhaps now that you've found the cause you'll be able to have some effective treatment and start to feel better; I do hope so.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Deb,

 

Sorry to hear you've been in the wars as well.

 

I'm intending to go to The Essex Group's meet so hopefully I might be able to see you and commiserate! :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Just give us some time to get used to this and then we will be back on our own two feet. Aren't we the tough ones?

 

I've been saying it for years! We sclerodermians are an exquisite bunch of people, up for anything with the ability to thrive, not just despite but with delight, whatever comes are way.

 

Many moons ago a doctor who ran a support group for people with rheumatoid arthritis wanted to join up with my scleroderma group because of our upbeat, determined attitude, because when together we laughed rather than complained. Isn't it amazing that we still have so much to offer to others?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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An update from me... I went to the neurosurgeon yesterday. He said that I definitely need to have surgery. The cervical stenosis is very bad. Due to the swallowing problems that I have, I'm not a candidate for them to get to the spine from the front. Therefore, I need to have open back surgery. The surgeon said this type of surgery is more painful than if they went in through the front.

 

The surgery is scheduled for October 24th.

 

Thanks for all the replies.

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JBG,

 

I hope all goes well with the operation. My neurosurgeon said it would be more painful to go through the back of the neck rather than the front & he did say I may need further surgery which would have to be done that way (there was a small section he couldn't get to from the front), but I'm leaving that until it really needs doing.

 

Take Care

 

Buttons

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Hi JBG,

 

Sorry to hear that you are going to need surgery to sort out the problem with your neck.

 

Hopefully this will resolve the problem and you will then start to feel much better and more comfortable.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi JGB,

 

I'm so sorry the neurology appointment turned out that way. Has the doctor given you any idea how long you will need to be in the hospital and what your recuperation period is likely to be? You know that we will all be cheering you on and holding you in our thoughts.

 

Warm hugs and my very best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Buttons - My neurosurgeon told me the same thing. He said in my case I have no choice because of my swallowing problems.

 

Jeannie - Thanks so much!!

>> Has the doctor given you any idea how long you will need to be in the hospital

Up to 4 days.

 

>> what your recuperation period is likely to be?

Bad pain for 2 weeks and 6 weeks to feel decent.

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Oh I am sorry JBG, that type of surgery sounds very daunting as does the recovery period. I hope you eventually get some relief as a result.

 

Take care and keep us informed please.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi JBG,

 

I'm sorry your surgery will be more involved but I'm glad they are taking your swallowing issues seriously, too, or else it would have made a bad situation even worse. I hope all goes well for your surgery, and am sending some warm hugs your way.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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My word, we do collect doctor's, don't we? :P In August I got to add an orthopedic surgeon (shoulder), vascular surgeon, and today (not admitting it is already the first of September), orthopedic surgeon (cervical spine). Thoracic Outlet Syndrome has been confirmed, problems with the disks C4 to C7 confirmed and although the results from the special CT aren't in (only one doctor in the regions 'reads' those), the vascular guy wants to see me again in about 10 days. Still have to have the follow-up with the shoulder guy.

 

I think my husband may suspect I am seeing another man. Honey, says I, it's men, plural. :blush:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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My goodness, Jeannie. You are collecting doctors at a rapid pace! I sure hope they come up with something helpful. Here's lots of warm hugs to tide you over.

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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