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eah

Left Ventricular Diastolic Dysfunction

5 posts in this topic

Has any one ever been diagnosed with Left Ventricular Diastolic Dysfunction with Sclero?

 

If so, can this lead to pulmonary hypertension?


ANN

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Hi Eah,

 

Thankfully I have not suffered with Left Ventricular Diastolic Dysfunction, so can't actually advise you from my own experience.

 

Please note I don't have any medical training apart from a first aid certificate (which is quite handy for splinting a broken leg or giving CPR to someone who's collapsed ;) ) but I understand that it is possible have pulmonary hypertension as a complication of left ventricular diastolic dysfunction. Here's another link to PH and Scleroderma which I hope you'll find interesting and informative.

 

I expect we have some other members who have experienced LV Diastolic Dysfunction and hopefully they'll be able to give you more first hand advice.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Eah,

 

I was just told I have Left Ventricular Diastolic Dysfunction, and also Pulmonary Artery Hypertension also some leaky valves and some more. This was a complete surprise to me. I am having to push my cardiologist right now for more testing while I wait to see my rhueumatologist, all this while changing Insurance companies. A dear friend with this cruddy disease said to me lately that it gets so tiresome to get these doctors to think outside the box, always push for yourself, and what you think the next step should be!

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Hi Eah,

 

Just out of curiosity does this mean you've been diagnosed with left ventricular diastolic dysfunction and/or have concerns about pulmonary hypertension?

 

If so for either, here are some great big, comforting warm hugs.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Eah

 

I have LVDD as part of heart failure resulting from myocardial fibrosis. I was diagnosed last year with class 3 (out of 5) heart failure and am doing much better after having a bi ventricular ICD put in although I am still in heart failure.

 

According to one rheumatologist I have pulmonary venous hypertension which is the direct result of left sided heart failure but it is an entirely different entity to pulmonry arterial hypertension.

 

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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