• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Tootired

Heart athrosclerosis with limited scleroderma?

8 posts in this topic

I am new to this site, but not new to scleroderma. I was diagnosed over 25 years ago, and have not had serious symptoms until lately. I am losing a lot of strength in my hands and have GI issues. At 60 years old, I expect problems, but didn't expect a heart attack. I exercise regularly, am of average weight, have a very low fat diet (GERD with Barrett's), and a total cholesterol of 159 with a good ratio. I didn't expect to have a heart attack after a 20 mile bike ride. I had been riding regularly and had no symptoms of impending heart stress. My RDA was almost totally blocked and I was fortunate to be near medical help. Is there any association of CREST with heart disease?

Share this post


Link to post
Share on other sites

Hi Tootired, welcome to the ISN Forums.

 

I'm sorry you've had a heart attack, very scary when they come out of the blue like that. I hope your 'event' was a one and only. We've got a little bit of an atherosclerosis section as it relates to scleroderma. You can find it here.

 

Has your doctor proposed physical therapy for your hand strength issues by any chance? It often helps more than the patient expects.

 

I hope you'll post often and let us get to know you. In the meantime, I send you my best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Tootired,

 

Welcome to these forums!

 

I'm very sorry to hear that you've suffered a heart attack; that must have been extremely frightening and I do hope it doesn't occur again. Although signs and symptoms of Limited Scleroderma usually develop more gradually than Diffuse Scleroderma unfortunately it can in some cases affect the lungs or heart, with potentially serious results.

 

We have a link here to some hand exercises which I hope you might find beneficial; I've also included a link to Barrett's Oesophagus and GERD which again may give you some more information.

 

Do please keep posting and let us know how you're faring.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Tootired

 

I have diffuse systemic sclerosis with myocardial fibrosis and subsequent heart failure, all my ailments are a direct result of scleroderma. Interestingly my mother has atherosclerosis resulting in 3 heart attacks the first of which was before she was 50, various stents put in and now a totally dead artery...creepy gross huh? She is still walking and talking though!

 

Love your name and if I could have a user name it would be tootiredtwo!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks for the reply. I think (and hope I'm correct..) that systemic scleroderma is different in symptoms from CREST. I appreciate everyone's responses, but I have CREST syndrome, and, from my "research" which scant, I found heart involvement is rare unless associated with pulmonary fibrosis. So far, I've found this site to be incredibly helpful. The last "forum" I joined had only 13 members with scleroderma and no one answered posts.

Share this post


Link to post
Share on other sites

Hi Tootired,

 

This happened to me too, two heart attacks in 2 years at ages, 47 and 49. I don't smoke, have good cholesterol, no family history, etc. the doctors insist it's not related, but they can't give me a good reason why it happened either. I'm on Plavix, aspirin and fish oil to help it not happen again and so far so good for 4 years. Keeping my fingers crossed and hope you get answers!

 

Karen.

Share this post


Link to post
Share on other sites

I also have CREST and experienced a 90 percent coronary blockage in 2003. I had a stent

inserted. Since then I've been fine with my heart symptoms. The doctors said the blockage was not from having CREST.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now