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ferny2200

Tattoos and Morphea

19 posts in this topic

Hi I have morphea but would like a tattoo, does anyone know if it is safe to have one? You may think I am mad wanting a tattoo when I have this disease but it is hard to describe. I want one as it's something I want on my skin not something I have to accept and deal with, if that makes any sense, not like morphea where I have no choice what happens and how it spreads etc. Can anyone help?

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Hi Ferny2200,

 

We have a whole section on the main site about tattoos. We also had an interesting discussion here on the forums. I can understand why you want one perfectly. Just be sure you understand the risks and take all the health and safety precautions.

 

Welcome to the forums - will you post and let us know how you are getting on and what you decide?

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Ferny2200,

 

Jeannie has given you a couple of excellent links to help you with your decision about having a tattoo so I just want to welcome you to these forums as well and hope you will keep posting and let us get to know you.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi, thank you for the replies and the links,

 

Still in two minds as worried about how my skin will heal etc. Has anyone ever had a very severe reaction? And does anyone know any specialists in the UK as I have seen dozens of dermatologists over the years but they only stay few months then go, so have to go over and over how it started, how long it's been and when I had the biopsy etc.

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Hi again Ferny2200,

 

I've included a link to Scleroderma specialists in the UK which I hope you'll find helpful. We do recommend consulting a Sclero specialist as sadly many rheumatologists and dermatologists do not have the knowledge and expertise to deal with this complex disease.

 

I've never had a tattoo, (although I very nearly had my stomach pierced, but mercifully decided against it!! ;) ) so can't advise you about severe reactions from my own experience. It's very possible, though, that we will have other members who may be able to give you some first hand information.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Ferny2200

 

Welcome to the forums! I don't have a tattoo neither have I ever wanted one. However I would dearly love to have my eyebrows tattooed in so I don't have to faff around with them when I wear make up. Nevertheless the thought of inviting morphea onto my face (I have systemic and localised scleroderma) prevents me from doing do particularly as I am in the active phase still. It's not worth the risk to me.

 

You could always ring the specialist nurses at the hospital nearest you from this list from the Scleroderma Society newsletter, just scroll down to page 12.

 

Take care and keep posting


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi, cheers again for the response I have printed the list off of specialists, my morphea appears to be progressive it going down my arm slightly and the dermatologist is debating if I should have a biopsy under my eye as a patch of skin has gone funny there. I have just been diagnosed with psoriasis on my scalp so could be either or? Is there a connection between morphea and psoriasis? lol

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Hi Ferny,

 

I happen to also have psoriasis and one of its favorite spots is around both of my eyes. I had to go off plaquenil because it worsens psoriasis so be sure to check all your medications in case they can cause or worsen psoriasis. I sure wouldn't like a biopsy taken anywhere around my eyes! Psoriasis is so distinctive, I think a knowledgeable dermatologist could tell the difference just by examination. Most types of psoriasis cause constant flaking/shedding which is very different from morphea so that alone should be a clue. But yes, you can have any form of scleroderma and psoriasis along with each other -- anything is possible and two skin conditions at once is actually not very unusual at all.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Tattoos are very artistic and they are the thing to have at the moment. I have looked at wonderful art work on people and thought the work was on par to some paintings.

 

Tattoos, if I had one in my extremities, even above - I just know I would not heal.

 

Think carefully and ask yourself how good your healing is.

 

Will you heal if you had one done and what the consequences would be if you didn’t?

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I have four tattoos myself, and they were all done prior to having my Scleroderma diagnosis. But I did have the condition when the last one was done. I have been thinking of having something added to the last tattoo I had and asked about having it done. I was told that they do not recommend having them as the healing is slower and may cause problems. So I decided to just have the ones I have and not risk it. But I would imagine it depends on where you want it done and how well you heal, my only problem area for healing is my hands. But I love my tattoos and would probably think about having another one if I seem to be doing okay with the healing on other body areas.

 

Cheers

Jean

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Hi!

 

I have CREST but am covered with tattoos. The whole of my back is covered, some of my arm and both feet. I plan on having a lot more too!! What I would say however is that the healing without a doubt is slower which means you will be prone to the tattoo scarring. What I suggest you do is only to have a small amount of tattooing done at a time and follow instructions for aftercare 100%. Keep the area as warm as possible when healing too.

 

Cheers

 

Lisa

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Hello Inkedup

 

The name kinda gives you multi tattoo approach away. :lol:

 

How much skin involvement, if any, do you have because that in itself is a consideration for many people with scleroderma, it's not just the healing issue but the quality/thickness/tightness of the skin in question.

 

At one point I had more tight skin than normal and although this has improved there is no way I would consider a tattoo in case it invited the tight skin back, I am still in the active phase of the disease so I can't rule out further skin involvement. Pity because I would love to have my eyebrows tattooed in regularly!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

If I sent a strange message before please ignore as my cat sat on my laptop!! :lol:

 

Luckily I don't have much skin involvement, which I'm very pleased about. I don't heal very well; I still have a bruise from last March!

 

Sounds like the skin involvement leads to a multitude of problems for some of you.

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Hi Inkedup,

 

We have not yet received the message that your cat sent. Perhaps he's taking a cat nap before hitting the Send button?

 

Actually, I can't think of anything more delightful than a cat on a laptop. We can't have cats or dogs where we live and sometimes Gene and I go through cravings for them. Years ago, we had a kitten who would always try to curl up on hook rugs as Gene was making them -- Serenity always needed to be in the center of action. It is still one of our favorite pet memories and there is nothing finer than a hook rug with cat hair woven into it. :emoticons-yes:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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