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Hi Lynn,


That's a really great question to ask your doctor, and to let us know what you find out.


However, I do know how much gumption it takes to bring up topics like that sometimes.


I would think they would have brought up the subject if it posed a serious risk to you. But then again, they might have forgotten or overlooked it, too.


Did they happen to mention anything at all that you shouldn't do, given your vasculitis? Such as, did they advise you to avoid vigorous or dangerous exercise or strong emotions? If they did, then you'd really want to clarify things. For example, it could be that anything is okay except very vigorous, strenuous exertion or certainly anything entailing blood-letting or possible tears. Few of us ever get all that carried away, especially when we have other health issues to deal with.


Overall, sex can be excellent and very good for people with most illnesses and with cardiovascular problems, because it is good for the heart, helps reduce pain, and even improves sleep. See 10 Surprising Health Benefits of Sex.on WebMD, as well as our section on Sexuality and Scleroderma.


I've found one way around asking delicate medical questions is to distance myself a bit in the way I ask it. For example, instead of asking, "Is it safe for me to have sex even though I have vasculitis?", I would ask, "Could you tell me whether or not it is safe for people who have vasculitis to have intercourse?"


Then I am talking about other people, so to speak, and not myself. Yes, it is still the same, but really, it is different from an emotional standpoint. At least, it is different enough to help me ask the more challenging, personal sort of questions that need to be tackled with our medical team.


Also, you might consider whether it would be harder for you to discuss this with a male. If so, you could ask one of your female doctors or assistants. Plus I'm sure others will have even more helpful advice.


Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Hello Lynn


I am sorry I have no idea but I just had to say you got gumption asking this question and good on you! I really hope you get an answer, in the meantime consider that another forum member may well now pluck up the courage to ask an intimate question of their own, knowing that, thanks to you it's perfectly great to do so.


Take care.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Lynn,


I do not have Vasculitis but I do have problems due to my Lichen Sclerosis and have been given different types of lubricants that have helped, as it is very painful for me to have intercourse. They also gave me Lidocaine, which was a bit pointless, no pain but I was completely numb and felt nothing. It does not seem that there are too many choices, at least my doctors don't know of any that help totally. In my case I have a very understanding husband and we do things a bit differently. We can still be intimate without causing me any pain, and that is wonderful for me as I still wish to share this with him if I can. Hopefully others may know of other things to use and I would be interested in them as well. As the supermarket add says Every little bit helps!




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Hi Lynn


I applaud you for asking your question, and I feel proud that the site/forum has made you feel at ease to be able too! :emoticon-congratulations:


I always think that people have these issues but tend to get all embarrassed how they will be seen, so avoid them!


I think (from a personal point of view) is to do what you feel comfortable with, seek your doctors advice and have any lubricants etc. that will help.


Also I feel that it's important to continue as normal a lifestyle as possible and that includes making love to our partners. It's the closest we can be to those we love, and as sclero can take away a lot of our normal everyday activities, it can be the 'normal' side of our lives and keep a loving bond with our partners who love and care for us!


Hoping that you continue to share and enjoy, with a few adaptations (haha), what makes you both happy.


Good for you!! :emoticons-line-dance:



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