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I have recently been diagnosed with Right Bundle Branch Block. I had 24 hour ECG (Holter monitoring) a few days ago and then an echocardiogram the next day.

 

I'm waiting to hear if they need to treat this. I've been feeling lightheaded, and my fatigue has been at it's worst recently.

 

Has anyone else had this? Did it need treatment?

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Hi Elvis,

 

I'm sorry you have right bundle branch block. Rarely, heart block can be caused by scleroderma or other connective tissue diseases. See our main site, Complications with Systemic Scleroderma Heart Involvement. There are many other possible causes of heart block, too.

 

I'm sure Amanda will have some answers for you, as she has left ventricular bundle branch block with scleroderma heart involvement. Have you caught her newest ISN video yet, Scleroderma Heart Involvement?

 

I may be wrong (I often am) but I think with heart block, they look to see if there is an underlying condition causing it, that they can treat. Here are some warm hugs to tide you over as you await more information on the results.

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Elvis,

 

I'm very sorry to hear that you've been diagnosed with Right Bundle Branch Block.

 

Thankfully I haven't experienced any heart involvement, but as Shelley has said, I expect Amanda will be able to give you some more advice about it.

 

Here's even more :emoticons-group-hug: to keep company with the ones Shelley's given you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Elvis

 

I was diagnosed in 2009 with left ventricular bundle branch block and basically what happened was that the right and left side of my heart didn't contract in sync anymore which affected cardiac function. My LVBBB was casued by myocardial fibrosis and this affected heart muscle as well which put me into heart failure so I had a pacemaker/defibrillator installed in September 2010 and although I am still technically in heart failure I am better than I was!

 

Bundle branch blocks can be cause by many things including slceroderma and some require treatment and some don't. Many people have BBB's all their lives and never know it because they never display any major symptoms and never require treatment. Is this your first ECHO, if so you could have always had the RVBBB and just happened upon it as cardiac monitoring is part and parcel of good scleroderma care.

 

I know it's a scary prospect when the heart is involved but be assured that even if you do become someone with "heart problems" they can be treated and you can feel better and I speak from personal experience! Please let us know what the ECHO results are and what, if any, treatment is recommended.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thankyou all for your replies.

 

I got a call from Cardiology yesterday asking to see me this afternoon. I am hoping they can make me feel a bit better than I do now. I will let you know I get on.

 

Take care.

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Hey Elvis I hope your appointment goes well/went well and you at least have an idea of what's what.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Well, my appointment really was a waste of time for the cardiologist and for me!

 

None of the results from my 24 hour ECG or echocardiogram were back for him to make any kind of diagnoses.It felt quite frustrating really as they called me at short notice. So my general practitioner is chasing these results. I'm feeling quite poorly so I hope they have the results soon.

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Oh, how infuriating, Elvis!! :angry:

 

I'm afraid that does seem to be one of the bugbears of the NHS; I've been very fortunate with my treatment but even so a lot of the time there's a distinct lack of communication between departments thereby wasting the time of both consultant and patient! A case of the right hand not knowing what the left is doing! :rolleyes:

 

I hope your general practitioner can chase up the results for you to enable your cardiologist to make a diagnosis and hopefully give you some treatment to make you feel better.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Elvis

 

What on earth prompted them to call you in then? Ma had the same incident happen, called in for an appointment that became a waste of time as no records/results and she complained to PALS (Patients Advice Liason Service) and they sorted everything out for her. Every hospital has a PALS department who could find out why you were called in, get your results and make another appointment for you that is not months off and that way you don't miss out because of someone's error.

 

I hope you get the results soon either way!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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