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Sweet

Lung Nodules

62 posts in this topic

Wow Sweet! What a lot to go through and still not everything is concrete. I hope you don't have PH or anything serious going on and that it can all be explained to you...quickly!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Pamela, good luck with all your upcoming tests. May you pass inspection on all fronts. Keep your chin up and think positive thoughts until someone tells you something that you have to deal with differently. You can still stay positive it just takes more work in doing so. Please let us know how you are fairing from time to time.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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My abdominal CT came back, showing numerous lesion on my liver, and a mass in my vagina. I'm leaving now to see my primary care doctor. He wants to feel the mass, and decide where we go from here. I think he was leaning towards getting an ultrasound on both. I already have an appointment with my OB-GYN in February for my annual fun stuff, so we'll see. This Thursday is my Echo and VQ Scan to check heart and lungs for PAH.

 

Keep the good thoughts coming!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sweet,

 

Oh my goodness. If its not one thing, it's another, isn't it? Or in your case, another on top of another on top of another. What an awful week. Exactly how are you supposed to be able to manage the stress from this?!

 

I think they really owe us some stress management help immediately following certain appointments. There are sure times I could have used a counselor right after getting some test results. Can you see it now, being ushered from the scan results straight into the office of a comforting therapist, with low lights, pleasant music and a list of tips to help survive the stressful experience in grand style...and then being passed off to a massage therapist with aromatherapy and a two hour deep massage, followed by a beauty makeover complete with water-resistant mascara, and then dinner at a five star hotel with the waiter suggesting their newest drink called Massive Relation Guaranteed?

 

Oh my, I can sure dream, can't I? And all those things and more I wish for you, as you and your doctors sort out the wheat from the chaff with all the tests and exams.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Oh Sweet, many, many good thoughts for you! :emoticons-i-care: :emoticon-hug:

 

I shall be thinking of you constantly and here is some extra good luck fairy dust for good measure. :fairy:

 

My very best wishes to you,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Dear Sweet,

 

What a load to have to carry, I have my fingers crossed that your primary care person will move fast and positive to get some answers for you.

 

:balloons: Here are some balloons to hitch your spirits to while you wait.

 

Warm hugs and best wishes from NZ

 

Judyt

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Dear Sweet,

 

I am thinking about you and wish you strength during all this testing and stress. :nervous: I like Shelley's idea of stress management therapy. In the meantime, as hard as it is to do this, since there isn't anything you can do about it right now except for what you are already doing, focus on the joy of seeing your son and grand daughters. Keep us posted and know you have a ton of support here.

 

miocean


ISN Artist

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Hi Sweet,

 

How did today's round of tests go for you?

 

I'm thinking of you and sending lots of warm thoughts your way!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Dear "Sweet Pam",

 

Okay now, deep breaths and (re: post of November 1st; Please follow Shelley's 2nd paragraph to a "T" as this is going to fix you right up, at least help relax you a bit).

 

Truly though, my friend, I will be holding you in my thoughts and hoping the very best outcome for you.

Please know that I have an endless supply of {{{{Loving hugs}}}} coming your way for as long as you need them.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks everyone, coming in here and reading your posts help so much.

 

Only news I have from my day long testing, is that the doctor who read my Abdominal CT that stated I have a mass in my vagina "mispoke" according to the guy that did my pelvic ultrasound with the vaginal probe. There is a mass, but it's not near as horrible as he said. It's in a totally different place than what he said, and it's not "complicated" it's "simple" which are terms used when trying to described how many walls, are within the mass, and what it's made up of.

 

I wasn't happy prior to this about waiting until December 6th to see my gynecologist, so prior to my testing day I called his nurse, explained the situation, and she got the abdominal CT that day and said she would get the pelvic ultrasound on Friday, and put it in front of the gynecologist, and if he didn't think I should wait until December 7th, he'd get me in.

 

Well after talking with the doctor who read the pelvic ultrasound, I felt better already. Then Friday while I was getting my hair done, my cell rings and it's my gynecologist. He said, yes, there is something there, but no it really wasn't something to worry about, but he still wants to see me December 6th, but no problem waiting until then.

 

So that's all I know so far. No word on the chest xray, VQ scan, or echo yet. But I'm super happy so far with just this! I'll get further detail on the mass when I see him December 6th, and I'll let you know if there is anything earth shattering there but I'm not expecting it.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thank goodness, Sweet; I realise it's a little premature to be celebrating but that news certainly sounds a lot more positive!

 

I'm keeping absolutely everything crossed for you (fingers, toes, etc. ;) ) and hope that it's good news on 6th December and that the other results of the tests you've had are equally positive.

 

:emoticons-group-hug:

 

My very best wishes to you,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Sweet,

 

Oh what wonderful news (sort of). I hope that your news is just as good on December 6th...and that all the other tests turn out okay, too. It's a lot of tests and a lot of results to deal with!

 

I hope that you're out of the Worry Zone but it doesn't sound like they've really sent up the All Clear signal yet, either. So here are some more warm hugs to tide you over.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thanks everyone! My heart is getting lighter all the time.

 

I got my VQ scan results that would show if I had any blood clots in my lungs that could contribute to my shortness of breath, and that was clear, so that's good. Still awaiting results on my chest Xray, and Echo. I had my liver U.S. done yesterday to better evaluate the lesion on it, to determine what that is, no results yet.

 

Thanks again for all of your concern, love you guys.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sweet,

 

One by one, bit by bit, the bad news seems to be turning into good news! I sure do hope it continues along the same path, so I'm still sending lots of good thoughts your way, Pam.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Sweet,

I am happy that you feel relieved and that things aren't are serious as originally presented.

 

It made me think, though...we sclerodermians who deal with so much can say that they are "super happy with this" when someone who hasn't experienced a chronic disease like ours would be freaking out! :temper-tantrum: We are The Best, aren't we?

 

Looking forward to continued good news,

miocean


ISN Artist

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You have been in my thoughts everyday.

I wish I could make it all go away.

 

For you do not deserve all of that stuff

Enough is enough is enough is enough!

 

I am wishing you good news and peace of mind

That you can leave all of this testing behind

 

And look to a future healthy and bright

Where you can shine your virulent light

 

 


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Awwwwwwwwwwwwwwwww Barefut, thank you!!! How so, very sweet of YOU.

 

Final results are in - good grief, finally. Liver U.S. show a simple hepatic cyst, nothing to worry about. The Echo was another story. Two of my valves are not working properly. They are not closing all the way, causing leakage. It's fairly minor right now. Also it appears I'm at the beginning of PAH. So another doctor visit soon, to go over medication treatments.

 

So finally, ON with life! Will have all of this rechecked I guess in about 6 months, along with another CT of my chest to re-evaluate the lung lesions and hoping they are the same size. OR GONE would be good with me. :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Ah Sweet

 

Finally, some answers for you. Sorry to hear your echo was not great news but it is likely good news that you caught it early and hopefully they will get you on the right medication/treatments to keep it that way (minor) for a very, very, very long time. Fingers and toes crossed for the lung lesions to disappear too.


Sending good wishes your way!

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Well yes, finally! You were kept waiting too long. I am so relieved that none of it is anything urgent. The beginning of PAH does worry me a bit though. How do you feel about it? What did the doctor say about it?

 

Love and hugs Missy!

 


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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