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Sweet

Lung Nodules

62 posts in this topic

Sweet,

I am happy that you feel relieved and that things aren't are serious as originally presented.

 

It made me think, though...we sclerodermians who deal with so much can say that they are "super happy with this" when someone who hasn't experienced a chronic disease like ours would be freaking out! :temper-tantrum: We are The Best, aren't we?

 

Looking forward to continued good news,

miocean


ISN Artist

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You have been in my thoughts everyday.

I wish I could make it all go away.

 

For you do not deserve all of that stuff

Enough is enough is enough is enough!

 

I am wishing you good news and peace of mind

That you can leave all of this testing behind

 

And look to a future healthy and bright

Where you can shine your virulent light

 

 


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Awwwwwwwwwwwwwwwww Barefut, thank you!!! How so, very sweet of YOU.

 

Final results are in - good grief, finally. Liver U.S. show a simple hepatic cyst, nothing to worry about. The Echo was another story. Two of my valves are not working properly. They are not closing all the way, causing leakage. It's fairly minor right now. Also it appears I'm at the beginning of PAH. So another doctor visit soon, to go over medication treatments.

 

So finally, ON with life! Will have all of this rechecked I guess in about 6 months, along with another CT of my chest to re-evaluate the lung lesions and hoping they are the same size. OR GONE would be good with me. :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Ah Sweet

 

Finally, some answers for you. Sorry to hear your echo was not great news but it is likely good news that you caught it early and hopefully they will get you on the right medication/treatments to keep it that way (minor) for a very, very, very long time. Fingers and toes crossed for the lung lesions to disappear too.


Sending good wishes your way!

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Well yes, finally! You were kept waiting too long. I am so relieved that none of it is anything urgent. The beginning of PAH does worry me a bit though. How do you feel about it? What did the doctor say about it?

 

Love and hugs Missy!

 


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hello Sweet,

 

So pleased to hear that things are not as bad as they might be. Onwards and upwards - more or less.

 

I had Mitral Stenosis until May last year when it was repaired by Balloon Valvuloplasty. An absolute piece of cake. I was in the cardiac ward for about 2 nights then home again and greatly improved.

 

I guess it will depend which valves are involved and what sort of damage they have whether you will benefit in the same way in the future. The damage to my valve was calcification from rheumatic fever, I don't know what other sort of damage causes the leaves of the valves not to close properly.

 

Let's hope you can get some help before too long. Actually, I know they don't usually do anything when it is only minor but I was lucky enough to get my treatment when the damage was only moderate because the cardiologist needed to be sure it wasn't PAH as well.

 

Warm hugs from your favorite little country!

 

Judyt

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Hi Sweet,

 

I am so pleased that things are much better than you feared, although the results from your ECHO are a bit disappointing. However, hopefully your doctor will be able to revise your medication to help everything to run along smoothly and you'll be able to enjoy life again with your family without such an awful worry hanging over you.

 

:emoticons-group-hug:

 

Best wishes to you,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Sweet, in scleroderma mild to moderate PAH can remain stable for long periods of time, so if your PAH is mild to moderate it could stay that way for ages! :yes:

 

Barefut's little ditty nearly made me cry, I read her blog about meeting you, clearly you left a great impression! :terrific:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Amanda - thanks for the PAH info! It is a scary thing and I don't know enough about it yet to ease my mind about Pam. I can only imagine how she feels but know she is educating herself and staying on top of her doctors and her care. She is an inspiration to us all regarding being our own advocates and an inspiration to me in so many other ways as well.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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You guys are the best. Amanda I too appreciate your words. I'm not overly worried about any of this, so I'm hoping that in itself, will be of benefit to my health and life.

Oh yes, Barefut is my buddy, we wub each other lol


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Pam,

 

I think I missed a beat or two in this thread. For the possible PAH, have they done a heart catheterization, yet? That is far more reliable than Echo. I also have some minor valve problem but luckily it has stayed minor for nearly forever. Luckily, I do think many of us can acquire a whole closet full of minor things that can be stable for a long time. It's just such a shock when they are first discovered, and such a worry trying to sort out whether they signify a threat to our very existence, or whether they are another thing to just live with.

 

At some point here, I'm hoping that a Sclero Happy Dance is called for. It doesn't feel quite right yet, though. Will you let us know if/when we reach that more settled point, Sweet?

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi, Sorry I've been a bit out of the loop here. Having a hard time keeping up with life in general. :)

 

No heart cath scheduled, they didn't really feel it was necessary I guess. I think I'm mild enough they aren't overly worried about it, therefore I'm not! :)

 

We're talking meds right now. I have to research everything, just because that's my personality before I agree to take anything, but they are talking Tracleer?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sweet,

That must be good news that they're not considering a heart catheterization and I hope everything settles down now for you.

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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