• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
Lynnie

possible operation on the cards can you advise please

10 posts in this topic

Hello Everyone!

 

Due to bothersome menstrual bleeding ...8weeks on and off a total pain!... I am probably going to have surgery.

 

I am due to see the gynaecologist at the beginning of December. My ultra-sound scan showed I had fibroids that had arrived and due to this wacky disease and my body's response, my general doctor seems to think that I'm trying to eradicate them myself!.

 

I am nearly 54 and she has said in her referral that in her opinion they should be removed. As well she has said due to the scleroderma perhaps a hysterectomy should be done at the same time to avoid post menopausal issues later. She would rather I have the operation while my health is relatively good than wait till later. My mouth opening is shrinking and I cannot open as wide as I used to hence her concerns re. anaesthesia being performed at a later time.

 

Have any of you any tips or experiences to help me to get through this as safely as possible?

 

Hugs and thanks

Lynn

Share this post


Link to post
Share on other sites

Hi Lynn,

 

Sorry to hear you are having problems, what a bother!!

 

As far as I know about things like this most abdominal surgery is done laparoscopically (keyhole) and actually it is much easier to recover from than in the past. I had quite major stomach surgery a few years ago and recovered quite quickly. Yes the mouth thing is a bit stressful, I have a very sensitive gag reflex but I make sure everybody knows and it always seems to be OK.

 

Best wishes to you, don't worry, it will be all right'

here are some balloons to lift your spirits :balloons:

 

Love JudyT

Share this post


Link to post
Share on other sites

Hi Lynn

 

I had a hysterectomy 20 years ago through having Endometriosis, mine was major abdominal surgery and took about 3 months recovery, basically six weeks doing not very much & then steadily increasing activity after that. A lot depends on how they do it because things have moved on so much so as laparoscopically & through the vagina. It is scary but I can honestly say I've never looked back!

 

It is scary thinking about it but you will be fine.

 

Buttons

Share this post


Link to post
Share on other sites

Hi Lynn,

 

I'm so sorry that you're having such problems with excessive bleeding and fibroids. It's very unpleasant; I speak from experience as I have five fibroids and actually had two others removed by laser treatment about 5-6 years ago. That particular treatment was not invasive and I was in and out of the hospital in a day.

 

I know how worrying these sorts of problems can be; I also have a slight prolapse which along with the fibroids has necessitated so many internal ultrasound scans I'm now on first name terms with the radiologist!! ;) :lol: I have a nasty, sneaking suspicion that I may possibly need to have a hysterectomy in the future, but more because of the prolapse rather than the fibroids; I'm trying to put it off as long as possible! ;)

 

I do hope you can get the problem resolved satisfactorily; obviously you don't want to have an operation if it's not absolutely neccessary but I can see the sense in doing it sooner rather than later if your health is stable at the moment.

 

:emoticons-group-hug:

 

My best wishes to you,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Lynnie

 

I had an operation last week to have my gall bladder removed and had also been told that there may be difficulties due my very small mouth opening. My mouth opening is one and half finger widths and the surgeon told me that I would have to be intubated whilst I was awake. However on the day of the operation the surgeon was very confident he could the intubation whilst I was asleep and he did this, much to my relief. Try not to worry too much, I am sure it will be fine

Good luck

Helen

Share this post


Link to post
Share on other sites

Hello Lynnie

 

To the best of my knowledge there is no medical evidence to support hysterectomies in scleroderma just in case you might have problems, in other words there is nothing to suggest that you should have a hysterectomy just because you have scleroderma.

 

Whatever operation you have I hope it goes well and your problems end!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Lynnie

 

Ask your surgeon if the anaesthetists run a clinic for patients with conditions that may make an anaesthetic more difficult. I'm secretary to an anaesthetist who runs such a clinic and he sees people with heart or breathing problems, anaesthetic phobias, and I know he has seen people with scleroderma. In our hospital the clinic is known as the "Anaesthetic Assessment Clinic". The anaesthetist I work for takes the patient's full medical history and makes recommendations about how to carry out the surgery and anaesthetic to best effect for the patient.

Share this post


Link to post
Share on other sites

Hi there,

 

Many thanks indeed for the kind words and infomation you have given me; I will certainly ask the consultant about the special assessment clinic.

 

I have very much come to the conclusion that if I need the operation to be 'done with it' I'm more than happy to go for the key-hole or vaginal hysterectomy but abdominal is in my view far too radical and I'll avoid that if I can.

 

At 54 and 40+ years of periods in my view is more than enough haha, I think they should invent a pill to end it all after 50 if you wish it lol; after all they have a pill for everything else. I'll keep you posted what they decide on the 13th December ...wish me luck!

 

Hugs to all,

Lynn :emoticon-hug: :thank-you:

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0