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miocean

Pulmonary Rehabilitation Dropout

35 posts in this topic

Hi Miocean,

 

As you know, my husband has had pulmonary rehab several times, both before and after his lung transplant. The most important part of it, as I understand, is to get people who are very sick or recovering to understand how they can safely exercise, and to heartily encourage them to do so. It's not always easy to talk couch potatoes into any sort of activity at all.

 

If you know what the goals are for your pulmonary rehab, and you have safe parameters to follow from your doctor, it's probably reasonable for you to follow your own program. Within a few weeks of finishing pulmonary rehab, my husband swapped out walking on the treadmill to walking outdoors as much as possible and in malls when that wasn't possible. Because he's doing what he loves, he looks forward to it, doesn't develop any excuses to try to quit, and it is just part and parcel of life -- not a chore and not an expense. He has an oximeter which he always keeps on hand but seldom needs to consult anymore.

 

The goal is to be active, and out and about, and breathing deeply, and for some people that's very hard to get the hang of, or worse yet, they quit doing anything at all the minute they graduate (or flunk out) of pulmonary rehab. You have walking buddies and are eager to get out and about -- so just keep on doing what you're doing! You may not need anything fancier, or more expensive, than a nice pair of walking shoes and the good sense to slow down when you need to.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I am thrilled to say I was able to do something I haven't been able to do for years..my husband and I walked up to the jetty and back, a 3 mile walk! I used to run it a couple of times a week, and then walked it once after scleroderma hit the fan but haven't since. I took 3 hours and we sat on benches a couple of times but it was a great feeling to be able to do it!

 

I know how to do pursed breathing from running and also know to keep at my pace so I don't get short of breath. Little by little..

 

miocean


ISN Artist

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That's fantastic, Miocean; I'm so pleased for you!! :emoticons-line-dance: :emoticons-line-dance:

 

I think it makes all the difference if you've got a lovely place to walk as well.

 

I do hope that 2012 will be a really good year for you and you'll continue to improve and be able to do lots more enjoyable walks! :emoticons-yes:

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I am happy, too :emoticons-line-dance:

 

I am already looking forward to being able to go back to museums, something I have really missed and living so close to one of the art capitals of the world would like to take advantage of again.

 

I am a "flatlander" though, a term I learned when I used to go camping in the mountains. It is pretty flat around here, the biggest hill is a bridge. :VeryHappy:

 

:happy-dance:

 

miocean


ISN Artist

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No Shelley, I don't make New Year's Resolutions, I usually break them by the 3rd! :)

 

However, my walking is not going as great as I'd hoped. How I ever did that 3 mile walk is beyond me, I must have been very determined. :P The past two walks of a much shorter length have had me sitting down to rest and really dragging the last couple of blocks and happy to get home and sit. My legs are achy, but tired achy, not that awful pain. Just like me, jump into something head first and then realize its over my depth.

 

Yesterday we went to my scleroderma center (see post on update of my tests). When I first went there 7 years ago I was on oxygen and the hallway from the entrance to the elevators seemed like it was miles and took forever. I remember commenting to my husband "why do they put the elevators so far away in a building where sick people come"? Now it is a relatively easy walk, although the design really should have taken the distance into account.

 

On the way there my foot went into a cramp and I was complaining about the pain, knowing I would have to do a short walk test and wondering how I was going to do it in pain. As I was walking down the hallway I passed a woman in a wheelchair with only one leg and it really put things in perspective. :blush:

 

But I'm NOT giving up. I'll just be taking baby steps. And I really like my couch and my bed!

 

miocean


ISN Artist

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Great news and walks miocean. Less leg pain and more outside sounds like a wonderful recipe. Congrats.


Kay Tee

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Shelley,

I posted all my test results in Yearly Test Updates.

 

Everything is going as well as can be expected, so that is great! Thanks for checking up on me.

 

miocean


ISN Artist

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