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Lately I have noticed that the corners of my mouth are dry and like my mouth is getting smaller or the corners are trying to make my mouth smaller. I was told that there is something I can read but I can't seem to find it in my searches. Any input on this or any thing I can read would be great.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hey Patty,

You are probably referring to microstomia (small mouth). Check the link and see if it answers you questions.

 

Prior to diagnosis, I developed this over time. My mouth opening kept getting smaller and smaller. I was having to cut my foods into really small bites and eating an apple the "normal way" or corn on the cob was not possible. However, that was one of those things that corrected itself through medication and exercises.

 

Please bring it up to the doctor the next time you go in.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I was just at the rheumatologist today and brought this up. The corners of my mouth are cracked open and it hurts. My mouth is getting smaller too. He didn't think my mouth looked bad. He's not the one trying to open it to eat. Quite weird!

Nan

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Thanks Janey,

 

You are the bomb!! This is what I was looking for. I see my rhummy tomorrow so I will ask her about this. Its driving me nuts because I yawn and I feel like I am going to rip the corners of my mouth open. nOt a good feeling at all.

 

 

Thanks again.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hi Patty! I have the same thing. Janey's right in that you should mention it to your rheumatologist. I use lots of petroleum jelly to keep my lips/ mouth area moisturized, specially at night. Oral/Facial exercises help in improving mouth opening so you could definitely look into that as well.

 

Best,

 

Claudia

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I just got a book from the library called "Scleroderma Caring for Your Hands and Face" by Jeanne L. Melvin, MS, OTR, FAOTA.

 

It's a small book, only 32 pages long, but full of information. It has exercises for your hands and face to help maintain mobility, and ways to measure how much mobility you have so you can tell if the exercises are helping, and ways to help relax your hands & face before stretching. Also there are general tips for dealing with Scleroderma. Sorry if I sound like a salesman - I really like this book! :)

 

It is out of print, and not available on Amazon. But it might be available through your library. The ISN link to it is:

http://www.sclero.org/scleroderma/symptoms/ske...to-z.html#joint

 

Karen

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