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fragiledancer2

fingertips and typing

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Hi- anybody found anything to protect finger tips when using my laptop? I have tried rubber finger thimbles, added soft putty or moleskin but my index finger really gets painful with an ulcer. Anybody using a stylus with Ipad or computer?

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I bought a stylus for my iPhone to have more control editing photos in some apps. However, the tip of the stylus is about the same size as a pencil eraser so it doesn't give that much control, I was hoping for one the size of a pencil point.

 

They are not very expensive. They showed me how I could use it on the track pad but I haven't done that. I know I read about people with disabilities who have to use mouth sticks hoping they would come out with a stylus to fit them for iPads.

 

It's worth a try. I am sorry your fingers hurt. For several years I had a difficult time typing and holding a pen, my writing was barely legible but that has improved as well.

 

miocean


ISN Artist

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Hi Fragiledancer,

 

Sorry to hear that you're suffering so much with the digital ulcers.

 

Miocean's right; it's worth a try with a stylus, if only to make things a little easier for you. I don't suffer with digital ulcers (thankfully) but my wrists and fingers are very stiff, despite taking Prednisolone, so unfortunately, unlike Miocean, my writing has deteriorated which is a shame, as I used to have lovely flowing writing. :(

 

I do hope you can find something to help you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I learned to type and use the mouse with other fingers when necessary - difficult, but had to do it.

 

I saw some rubbery pad thingys somewhere (can't remember where) that you put on each key. They were meant to stop the clicking of fingernails on a keyboard, but I think it's possible they'd make the keys slightly softer to the touch, too. Although if you had a full-fledged ulcer, no pressure would be acceptable, so something like that may only work in-between active ulcers.

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I used to hold a pencil in each hand and hit the keys with that. In the begining, prior to sclerodactyly, when my hands and fingers were totally straight but totally stiff and unbending, as were my wrists, it was the only way I could type. Ironically sclerodactyly has caused my fingers to bend inwards and are now more angeled towards the keypad. I guess there are benefits to everything.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Fragiledancer,

 

I am sorry that your finger ulcer is making it hard to type. I am going to send extra warm hugs your way!

 

:emoticons-group-hug: :emoticons-group-hug:

I have used a stylus (pen type mouse) for years. It's good provided you are okay holding a pen or pencil. I also have a miniature keyboard, so that I can type with just one hand, when necessary. I usually use a special keyboard, which is ergonomically correct (split down the middle and the keys indented for more natural movement). And I use a touchpad mouse that has programmable keys. I also use macro keys on my keyboard so that I don't have to repetitively type common phrases.

 

But if I were you, I think I'd look into language-driven software, so that you can speak, instead of type. Then also combine that with discipline, such as simply not using the computer for some things. For example, call the 1-800 numbers to order something verbally rather than having to type out the info. Use auto-fill programs for security and ease of use, too (they are cheap, some are even free.) Skip all the unnecessary use of hands, such as for playing games, texting, or general browsing; save your fingers/hands for only doing something that nobody else can do for you.

 

Also, ask other people to do a computer chores -- or any other thing that impacts your finger(s) -- for you. What I'm saying is, go beyond just thinking about keyboards and expand your list of don't-do's so that you CAN do your important occupational therapy hand exercises, take your meds, make your doctor visits, and get those ulcers to heal.

 

Remember, if they are not getting better, it means they are getting worse! So your job is to keep them on the healing path and to explore everything that might worsen them, in an effort to avoid those things so that they heal.

 

Please let us know what things and tips and tricks you've found to avoid worsening them!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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