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Joelf

We Remember Roger (Birdman) Ford

11 posts in this topic

Jason Ford and Cari Mull have donated in loving lasting memory of Roger (Birdman) Ford. Many of us in Sclero Forums will recall that Roger passed away due to complications of a stem cell transplant for scleroderma. 01/05/12. (Also see: Sclero Shop/Donate)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Yes, I remember Roger Birdman Ford and his wife and that he passed away after the transplant. My best wishes to his wife, family and friends and thanks for this kind donation.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I remember both of them & send best wishes to his wife & family.

 

Buttons

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Roger (Birdman) and Julie (Birdman's Wife) put up quite a fight to try to save his life with a stem cell transplant. Most unfortunately, he lost his life due to a post-transplant infection. Some of us here have benefited by a stem cell transplant (sometimes doing amazingly well), and others have been seriously impaired or died because of it.

 

What is especially heart-warming to me about this forum is that we all provide support for those who enjoy the success of cutting-edge treatments, and that we also provide sincere comfort and lasting remembrance for those who were injured or passed away due to them. Since there is no proven cure for scleroderma yet, it is inevitable that some of us will not succeed on even the best therapies available. They are those of us on the "front lines" so to speak. My hat goes off to everyone who has tried -- whether it was a medical success, or not. And especially to Birdman, and his family, who put up an enormously positive fight for survival.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Aw...Birdman. And Birdman's Wife. I well remember them.

 

I'm taking a moment right now to think about them and all the others who have fought the battle bravely. Thank you all.

 

:flowers:

 

miocean


ISN Artist

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My thoughts are also with Birdman's wife and family. I forgot.....is she also struggling with Scleroderma?

 

Margaret

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Margaret, Julie, didn't have scleroderma, Roger did and he died after a post stem cell transplant infection took hold.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thanks Birdman's wife for your kind donation! Many of us here at ISN had the privilege of knowing you virtually and remember you fondly. Our best wishes moving forward.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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