• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
amberjolie

Biologics; has anyone tried any?

3 posts in this topic

My husband, who has ankylosing spondylitis, has found some relief using biologics. For him, he first tried Remicade, but he doesn't do well with intravenous things, so he switched to Etanercept (Enbrel). He wanted me to push the rheumatologist to get me to try Infliximab (Remicade), which will likely be very difficult unless I try other medications first. The insurance companies don't like to cover it until everything else has been tried first.

 

But I don't see a large amount of information out there regarding scleroderma and biologics. I don't think they've been specifically "approved" for scleroderma.

 

So I was wondering if anyone on this forum had any experience with any biologics, whether it be Infliximab (Remicade), Etanercept (Enbrel), Adalimumab (Humera), or I think there's one other new one that I can't think of the name. If so, what are you trying or what have you tried? What benefits, or lack of benefits, have you had?

Share this post


Link to post
Share on other sites

Hello Amberjoilie

 

Firstly I have to direct you to the information we have on site about biologics, secondly I have to say I have no first hand experience but I do have a friend with scleroderma who had IV infusions of Rituximab. We're in the UK and she felt better after it with minimal side effects. I see her tomorrow so will try and remember to ask her a bit more about it.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Amberjolie,

 

Like Amanda, I'm afraid I have no first hand experience with biologics but I do expect we will have other members who will be able to give you some first hand information.

 

We have another link here Biologic Therapy for Systemic Sclerosis (SSc): A Systematic Review which I hope you'll find interesting and informative.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now