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Joelf

Featuring: Northwestern Scleroderma Program in Chicago

4 posts in this topic

Northwestern Scleroderma Program in Chicago.

 

This center serves adult scleroderma patients from throughout the Midwest. They are dedicated to providing exceptional care while pursuing research toward a cure for scleroderma. ISN. Posted 01/26/12.

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Does anyone know if there is an institute, research in the Arizona area? I just cannot find much as to the amount of research in progress. I am new to this but it seems like there is not much effort as with other diseases.

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Hello Sonk

 

Welcome to the forums! The information we have for Arizona is:

 

Institution: Mayo Clinic Scottsdale

13400 E Shea Blvd

Scottsdale, AZ 85259

Coordinating Investigator: Leroy Griffing, MD

Lester Mertz, MD

Telephone: (480) 301-7105

Fax Number: (480) 301-7558

 

Here is our list of scleroderma experts for information.

 

Funny that you should say there's not that much effort with this disease, we have been discussing that very point in this topic. Unfortunately scleroderma does lack funding, research, publicity and understanding which just adds to the difficulty for those of us with it.

 

What type of scleroderma do you have and have you been diagnosed long?

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Sonk,

 

Welcome to these forums!

 

As Amanda has said, Scleroderma is an unusual and complex disease, which sadly many rheumatologists do not really understand. This is why we always recommend that our members consult a Scleroderma specialist, such as those on the list Amanda has given you.

 

Do post again and let us get to know you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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