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Shelley Ensz

Happy Valentine's Day!

14 posts in this topic

Valentine's Day is coming up soon. Who could love you more than all of your friends at sclero.org?

 

Join me in sending lots of virtual love to all of our Sclero Forums members.

 

Even (or especially) if you've never posted before, now is the perfect time you can join in by simply sending your greetings. To do that, first, log in to the forums (in the upper right hand corner of the page). Then click Reply to this message. When you are composing a message, click on the Smiley Face to see all the emoticons you can send, then you will find them beneath the message composing window. Just click on them to add one to your post.

 

:happy-day: :flowers: :emoticons-i-care: :emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Happy Valentine's Day Shelley, Jo & all members. :)

 

(((hugs)))

 

:happy1-by-lisa-volz: :flowers: :emoticon-hug: :emoticons-group-hug:

 

Annie <3


Diffuse Systemic Sclerosis, (Scleroderma). Lung, skin and gastrointestinal involvement.

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Happy Valentines Day to each and every one of You...Scleroderma Family :emoticon-hug:

 

May You all realize how Very Special you are and what You mean to this Forum :balloons:

As Shelley mentioned...If you haven't yet posted, please do! We don't bite, but we DO give LOTS of Virtual Hugs :emoticons-group-hug: AND will do all we can to Help, as well as Support You.

We also would like to welcome You to any or ALL of the Chats...Each and every one of You is Welcome, as You already have Membership to this Scleroderma Family Club! I host 2 Chats and I KNOW there are many of You (provided your schedule allows)

who would enjoy meeting there! Please don't feel uneasy about joining in to a chat because they are stress-free and even FUN :emoticons-yes:

Hope You find Your way there SOON because we really do have some great chats! If You aren't sure when we "meet", check out 'CHATS' for the Days/Times.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Everybody,

 

Have you missed me? I have been ill again since last Tuesday, spent my birthday in agony and just came home today from Hospital in time for Valentines Day!!

 

HAPPY VALENTINES DAY EVERYBODY

 

I did get 2 dozen roses while I was incarcerated and they are just gorgeous. Hope you all get some too.

 

JudyT

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Oh Judy, I'm so sorry to hear that you've been ill.

 

I do hope that you're feeling much better now and how lovely to receive 2 dozen roses, although it's a shame that you weren't well on your birthday.

 

Here's hoping you continue to improve. :flowers:

 

:emoticons-group-hug:

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Happy Valentine's Day to everyone who reads this post. I love this forum as it reminds me that I am not alone!! I am sending you all love.

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Hi Judy,

 

I am so glad you are home now, but feet horrible for You, being in such a way on Your own Birthday :(

What was the cause of your agony, if you don't mind sharing? I sure hope that all is right, now and that

you are feeling much better. It's nice you got beautiful flowers (while in the hospital) and I'm hoping they

had something to do with speeding up your recovery, too!

 

I'm sending you a bouquet of balloons, to sit among all of your beautiful flowers (from Jo and the other thoughtful

ones).

 

Hope your Valentines Day is wonderful!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks for the good wishes. I am not really sure yet what went wrong, but I have bowel issues as most of you know and I was in hospital on 31 January having an SNS implant. Came home on the Wednesday and was quite fine until following Tuesday morning when I woke with a tummy ache low down. Actually thought I might have pulled a muscle because I was moving beds the day before. Family were coming to stay (and still did) for the weekend at our Beach house. By the mid afternoon on Tuesday I was feeling quite sick and sore. Went to the general practitioner who suggested getting back to the Gastro as soon as possible. Threw up all night, Wednesday (my birthday) I was in agony, saw the Gastro 6pm then had another terrible night and first thing in the morning got my husband to drive me to Emergency.

 

We have a system more like UK here and the Gastro I saw privately (and paid for) was on duty at the public hospital and he and his team looked after me for free!! Anyway after all this agony they decided I had a small bowel obstruction and admitted me to his ward. By then my kidneys were under stress so they couldn't do a CT and I was kept on IV fluids until Saturday with a nasal gastric tube to drain my stomach until late on Saturday. They gave me a preparation called Gastrografin to drink then after 4 hoursdid an xray and found the blockage in my small bowel. That preparation is supposed to work like Drano and do the unblocking - and it did - you really don't want to know about the next morning :o the poor nurse said "just my luck".. Had another xray later in the day which showed a very sad but clear small bowel.

 

Now his opinion is that I have bacterial overgrowth and have had for years - I just wish we had at least ONE Sclero Expert in this country. Just one wouldn't be too much to ask would it? The doctors are all very earnest and compassionate but nobody seems to have the whole picture together.

 

Anyway, I never imagined that such a thing could happen to me, and get so sick so quickly. I try hard to keep on top of everything and to make sure nothing gets forgotten or overlooked. How people who won't go to the doctor get on I can't imagine. I kept thinkig of Miocean and how quickly her crisis crept up on her. Just as well I am determined not to suffer and ask for help early.

 

I go back tomorrow for the review of the SNS so that is an ongoing saga. In the meantime the antibiotics for the overgrowth have disagreed with me, I haven't had a shower for 2 weeks my hair looks like a bramble bush and I am going to get a blow wave and my nails done at lunch time today. So there!!!

 

Warm hugs and happy Valentines to everybody.

 

JudyT

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:balloons: :balloons: :balloons:HAPPY VALENTINE'S DAY! :balloons: :balloons: :balloons:

May there be love in your life

and most importantly, may you love yourself.

 

To all on the forum I thank you for giving me a place to belong, a safe place full of support and information. To those of you who haven't posted yet I hope one day you will because you will find you help others go through this journey and you don't have to go it alone.

 

JudyT,

>"nobody seems to have the whole picture together."

Even I, the winner of the "Most Ologists", don't have that perfect someone to put the whole picture together. I am so sorry you have been so sick and hope things straighten out and that all goes well from here on in. Scleroderma is such a complicated puzzle even for the experts. Actually, I think the REAL experts are on this forum. We have learned more about what is going on through discussion and research and the great medical information on the ISN.

 

 

I have been away from the forum for a three weeks but for me it was for a vacation. Everything was wonderful. But I made a big mistake coming home. It is a little airport we were flying home from and I decided not to ask for wheelchair assistance, thinking I could manage it. I also decided not to take my anti-anxiety medication until right before I got on the plane. WRONG. About halfway through the line going through customs I realized how hard it was for me but toughed it out even though my legs were giving out. We got inside the terminal and I said to my husband, "this is exactly what will set off a panic attack" as there were lights and loud noises, announcments in foreign langages, a lot of people in a small space, just what will set me off. As soon as we got to the gate I took my medicine but it was too late. I, the queen of GI effects of panic, went running to the bathroom and didn't quite make it. After cleaning up the mess I left a pair of panties in the garbage and fortunately had another pair of long pants in my carry on, not in case I had an emergency but because I like them and didn't want to lose them if my luggage was lost! :P Learned my lesson.

 

I love you all. :wub:

 

miocean


ISN Artist

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:balloons: :balloons: Happy Valentines Day to everyone. Thanks for being here to help!!! :balloons: :balloons:

 

Take care, Everyone.

 

Margaret

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Hi Judy,

 

I do hope your SNS review goes okay tomorrow. A good friend of mine also had bacterial overgrowth in her gut and a bad reaction to the anti-biotics prescribed. She did largely help the problem with very careful attention to her diet, which I expect you've also done and thankfully it does seem to have settled down. I hope that by now your nails and hair are sorted!! :)

 

 

 

............As soon as we got to the gate I took my medicine but it was too late. I, the queen of GI effects of panic, went running to the bathroom and didn't quite make it. After cleaning up the mess I left a pair of panties in the garbage and fortunately had another pair of long pants in my carry on, not in case I had an emergency but because I like them and didn't want to lose them if my luggage was lost! :P Learned my lesson.

 

Oh Miocean, I am sorry! How awful that must have been for you! :(

 

Another friend of mine had a similar accident, mainly because she had to go for a hospital checkup she had been dreading, got herself into a bit of a state about it and like you couldn't get to the toilet in time. Sadly she hadn't had the presence of mind to bring a change of underwear with her but being a hospital they helped her clean up and gave her something to wear to go home in.

 

I do hope that despite your unfortunate journey home, you had a wonderful holiday!

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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