Sooty30

Hello I'm new to this help with prescriptions

7 posts in this topic

Hi,

 

My husband was told he has diffuse scleroderma last week and has also been told he has lung Fibrosis. His results came back yesterday. He has a lot of scarring and his lung function is only 50%.

 

Can we get exempt from paying for prescriptions? We have broughts loads already. I know we can do a yearly one, but would like to know where we stand.

 

Thanks.

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Hi Sooty30,

 

Welcome to these forums!!

 

I'm sorry to hear that your husband has Diffuse Scleroderma and Pulmonary Fibrosis.

 

I also have Interstitial Lung Disease and I'm afraid I have to pay for my prescriptions. My general practitioner suggested that as I didn't want to a) take out a mortgage or b) buy shares in the company that provides my medication ;) I should obtain a yearly pre paid prescription which I have done for the past two and a half years. It has worked out a lot cheaper purchasing medications this way. However, this November I shall be sixty <whisper> so I'll qualify for free prescriptions.

 

Perhaps you could enquire from your general practitioner as to whether your husband would be exempt from prescription charges and I've included links for you to Help with NHS health costs and our Disability Resources page which I hope will help answer your queries.

 

Do keep posting and let us know how your husband is faring.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Sooty 30,

 

Like Jo I pay for an annual prescription as unfortunately people with scleroderma do not qualify for free prescriptions. I do get a real bee in my bonnet about this. People who have hypothyroidism get not only free thyroxine but free every other medication as well. My husband has cancer and gets free prescriptions, although none of the medications he takes are for treating his cancer, and people with diabetes get free prescriptions. It's not that I begrudge people with these conditions having free prescriptions, I just feel that the list of conditions that qualify is very arbitary. For example my son has renal failure and takes 5 different medications for this- they are not optional, but life preserving, yet he does not qualify for free prescriptions. Rant over!

 

Sorry to hear that your husband has diffuse scleroderma.

Lizzie

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Hello All

 

If you are unable to get out of the house on your own you are entitled to FREE prescriptions, as per the NHS Direct website: have a continuing physical disability that prevents you from going out without help from another person and have a valid MedEx certificate. I have a continuing physical disability and can't go out without another person so I have an exemption certificate, sigend by my doctor, and I pay nothing for it and nothing for prescriptions. Sooty, would your husband meet this criterion and if so would your doctor support him?

 

Lizzie, I agree the list of diseases covered needs revising, my former brother in law had prostate cancer which entitled him to free prescription. He didn't need the financial help and thankfully recovered thus returning to work and an income. Me, I'll never work again even if I get well enough to get out of the house on my own but at that point will have to prepay like everyone else.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

No, my husband is still at work; on shortened shifts and off sick tonight as his coughing is so bad. I have to admit he hasn't left the house much only when he really has to but he does go out on his own when he goes to work. I get the feeling we are at the very start of this; he has 7 months to get back on 12 hour shifts. I am hoping he gets better but I really can't see that happening. He gets on to me if I look too far into the future but I can't help it as we have a 2 year old; I have to think ahead if that makes sense.

 

Anyway back to prescriptions I will keep asking wherever we go. His general practitioner said he could sign it but it might not get us anywhere. I'm going to get a 3 month one to start with then a yearly one.

If he is medically retired would that make a difference? Our union said this is what could happen if things don't improve. Sorry for my rumblings; just a lot to take in over the last couple of weeks.

 

Many thanks,

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Hi Sooty30,

 

I'm so sorry but I don't think that your husband will qualify for free prescriptions even if he is medically retired; however, I think your general practitioner would be the best person to advise you.

 

As Amanda has advised, it would seem that the position could be revised if your husband got to the stage where he couldn't leave the house unaided.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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