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Jalee85

Update NailFold Capillaries

7 posts in this topic

I haven't posted much lately some current events would seem to be point toward lupus but I have some what of a hardening around my nailfolds. It's really odd because it is not a typical scleroderma response and this can happen in lupus to. I am seeing a dermatologist on April 4th for some biopsies and stuff and I am hoping that this appointment helps me out.

 

I actually got a microscope to check out my own capillaries and I wanted to share with you all. I even had a sclero specialist on the east coast say that the pictures where quite impressive! That made my day aside from she followed that up with that it won't give a more clear diagnosis...lol


Jalee

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Hmmm, I have hardening around my nailfolds, too, but none of the doctors who I showed it to said anything about lupus. I definitely have scleroderma, though.

 

I've been referred to a scleroderma specialist (she's an hour away, but I guess that's not too bad, because I think she's one of the best from what I've read), and I think she looks after people with lupus, too, so I suppose if there was anything, she'd be the one to catch it.

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Thanks for the update Jalee. I hope your new appointment helps sort things our for you as well.

 

Amberjolie, where is your new doctor...wondering if she is in London (that's where mine is).


Sending good wishes your way!

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My Rheumatologist said the nail fold capillaries and hardening are part of Scleroderma and definitely ran all the tests to make sure there was no lupus overlap. They all came back negative for lupus. Good luck.

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Hi Aahhum,

 

Welcome to these forums!

 

It's certainly good news that you're not suffering lupus overlap with Scleroderma.

 

Have you been diagnosed very long? Do post again and let us get to know you.

 

Kind regards,


Jo Frowde

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Hello Aahhum

 

Welcome to the forums and if you have scleroderma you really don't need anything else so it's great you don't have lupus as well.

 

Take care and keep posting as we'd like to get to know you.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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