Jump to content
Sclero Forums
Jalee85

Update NailFold Capillaries

Recommended Posts

I haven't posted much lately some current events would seem to be point toward lupus but I have some what of a hardening around my nailfolds. It's really odd because it is not a typical scleroderma response and this can happen in lupus to. I am seeing a dermatologist on April 4th for some biopsies and stuff and I am hoping that this appointment helps me out.

 

I actually got a microscope to check out my own capillaries and I wanted to share with you all. I even had a sclero specialist on the east coast say that the pictures where quite impressive! That made my day aside from she followed that up with that it won't give a more clear diagnosis...lol


Jalee

Share this post


Link to post
Share on other sites

Hmmm, I have hardening around my nailfolds, too, but none of the doctors who I showed it to said anything about lupus. I definitely have scleroderma, though.

 

I've been referred to a scleroderma specialist (she's an hour away, but I guess that's not too bad, because I think she's one of the best from what I've read), and I think she looks after people with lupus, too, so I suppose if there was anything, she'd be the one to catch it.

Share this post


Link to post
Share on other sites

Hi Jalee,

 

We do have a medical page with information on Lupus in overlap, which will give you some more information.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks for the update Jalee. I hope your new appointment helps sort things our for you as well.

 

Amberjolie, where is your new doctor...wondering if she is in London (that's where mine is).


Sending good wishes your way!

Share this post


Link to post
Share on other sites

My Rheumatologist said the nail fold capillaries and hardening are part of Scleroderma and definitely ran all the tests to make sure there was no lupus overlap. They all came back negative for lupus. Good luck.

Share this post


Link to post
Share on other sites

Hi Aahhum,

 

Welcome to these forums!

 

It's certainly good news that you're not suffering lupus overlap with Scleroderma.

 

Have you been diagnosed very long? Do post again and let us get to know you.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Aahhum

 

Welcome to the forums and if you have scleroderma you really don't need anything else so it's great you don't have lupus as well.

 

Take care and keep posting as we'd like to get to know you.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...