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summer

Can Anyone Help!

4 posts in this topic

Hi Everyone,

I had an Echocardiogram last week and the Radiographer that did it mentioned that she found a leaking valve in my heart. She said that everything else looked normal and that it would only probably leak about 1 teaspoon of blood but not to worry. Well of course I'm worried!!!!! is this Sclero related and has anyone out their had this or heard of this. I am not due to see my rheumatologist for a couple of weeks and the results of the Echo take about 2 weeks anyway to get to my rheumatologist.

Many thanks

Celia

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Hi Ced

 

I'm no expert, and a new member to this forum. I've had a few echo's done as I am part of a study over in WA. I haven't had any issues such as that, but I believe that if it were a major issue the cardiologist would have referred you immediately. I tend to find that all my specialists (immuno and renal) confer together and discuss things behind the scenes.

 

I know its not much help but I hope a little more comforting :)

 

Monika.

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Hi Celia, I had an echocardiogram years before being diagnosed with Sclero, because I have palpitations and at the time my heartrate was slow too. My echo. showed leaking too; the exact words were "trace mitral valve and trace tricuspid valve regurgitation". However, it was just a small amount of leaking and still considered to be normal, and my Dr. didn't refer me to a cardiologist.

 

So I have been wondering the same thing, "is it from Sclero?" I guess we have no way of knowing for sure, but now we know there's at least one other person out there with the same thing!

 

I had a couple other abnormal tests too - there is a nodule on my thyroid and one ovary is bigger than the other. Both considered "normal" or at least not something I need treated. I wondered if that is the Sclero too.

 

Karen

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Hello Celia,

My ECHO's for the past 4 years have come back with a leaky valve statement. Now I have two leaky valves. Originally my cardiologist explained it by saying that the majority of people (especially as we age) have leaky valves and that we're seeing more and more of it due to the increased sensitivity of the ECHO equipment. Now that I have developed cardiac problems, primarily with the conductive system, and a small increase in leaky valves, it is apparent the the sclero is affecting the connective tissue in the heart valves. It's still not enough to be concerned at this point. Remember - the heart is just another muscle.

 

Cardiac Involvement is possible with scleroderma but not near as prevalent as other problems. I would talk to your doctor about the statement from the ECHO just for your reassurance that a leaky valve is relatively normal.

 

I hope this helps.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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