inkedup Posted March 15, 2012 Share Posted March 15, 2012 Following my horrible rheumatology appointment (!) and feeling more awful than ever, I can hardly get out of bed in the morning, I went back to my general practitioner who arranged for me to have some blood tests. It looks as if I'm developing PBC (primary biliary cirrosis) and may need a referral to a hepatologist, but I have also been immediately started on thyroxine as I'm really suffering from hypothyroidism. This explains the terrible exhaustion I',m feeling. This is now 3 autoimmune conditions. Does anyone else have all 3 conditions and have experience of this? Quote Link to post Share on other sites
Amanda Thorpe Posted March 15, 2012 Share Posted March 15, 2012 Hello Inkedup I know of people with scleroderma who have primary biliary cirrhosis (PBC) and people with scleroderma who have hypothyroidism but can't recall anyone else with all three, sorry! It's very hard to have fatigue from scleroderma and another illness, I have scleroderma fatigue and fatigue from heart failure caused by myocardial fibrosis caused by scleroderma. Last time I saw my rheumatologist he described it as having a double whammy of fatigue and boy do I know it spending more time each day asleep than awake. I hope the thyroxine helps the fatigue and how do they treat PBC? Take care. Quote Link to post Share on other sites
Joelf Posted March 15, 2012 Share Posted March 15, 2012 Hi Inkedup, Like Amanda, I'm afraid I've never heard of anyone having all three conditions:- primary biliary cirrhosis (PBC), hypothyroidism and Scleroderma at the same time although we do have quite a few of our members who have more than one auto immune disease. I am sorry to hear that you've experiencing so many problems at the moment. The fatigue must be so debilitating and must make everything you have to do a real effort. I do hope that the hepatologist can advise you and prescribe something to improve your quality of life. Kind regards, Quote Link to post Share on other sites
chockers Posted March 17, 2012 Share Posted March 17, 2012 One thing, now you should get free prescriptions because of the thyroid. Quote Link to post Share on other sites
Amanda Thorpe Posted March 17, 2012 Share Posted March 17, 2012 Chocker's is right, prescriptions are free if you have hypothyroidism requiring thyroid hormone replacement, see NHS Choices. Take care. Quote Link to post Share on other sites
inkedup Posted March 18, 2012 Author Share Posted March 18, 2012 Hurrah! That'll save a few quid! Quote Link to post Share on other sites
night owl Posted March 22, 2012 Share Posted March 22, 2012 Hi I have free prescriptions because of an under active thyroid, an auto immune condition. You could say it's one of the best benefits from having Scleroderma. It's saved pounds over the years. Apply for your free prescriptions; you will not regret it. Night Owl Quote Link to post Share on other sites
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