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Cheerful Carole

Dry Mouth

8 posts in this topic

My mouth has been dry for over a year now but lately it has got worse. I always carry water with me, my dentist suggested I put a drop or two of lemon juice in the bottle. My specialist prescribed synthetic saliva - but my main problem is when I am eating. Sometimes I chew and chew and chew and get nowhere - OH says I look like the beasts in the field !!!! :blink: If I talk for any length of time, my tongue practically sticks to the roof of my mouth and I have given up licking envelopes !

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Hi Carole,

 

How very unpleasant for you; I'm so sorry.

 

I'm afraid I can't advise you from my own experience, as thankfully I don't suffer from Xerostomia (dry mouth) but I'm hoping that the link I've included will give you some more information and helpful ideas to deal with it. I've also found a useful thread on Dry mouth whereby some of our members have some more suggestions.

 

I expect others will be along to give you some more first hand information and help.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Carole

 

I suffer with dry mouth and eyes intermittently but only when I am lying flat, weird eh? I tried synthetic saliva and it was just plain gross and no help at all. From what I remember reading people in the US with dry mouth find a range of Biotene products helpful which includes mouthwash, toothpaste, gum etc. You can purchase them from an online shopping network that has a UK site, the retailer begins with A and is usually associated with books. If that's not clear PM me!

 

It is important to treat dry mouth vigilantly, not just because of the symptoms but the damage it can do to the gums and teeth in the long run.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Carole,

I know just what you mean, I have the same problem and have had for years. For a while I used Biotene gum which works well, but one does start to feel a bit like an old version of a beast in the field!! Water and Biotene mouthwash are helpful, particularly the mouthwash when it comes to bacterial health.

 

At mealtimes I always have to ensure that there is plenty of moisture in what I eat - soggy :emoticon-dont-know: tomato sandwiches with cheese are a favourite, and if the bread is older than today's I toast the sandwich but not too much. I eat gravy or mayonnaise with everything. Italian type recipes where there is plenty of sauce like bolognaise. Casseroles and soups go down well. I never have toast for breakfast, always porrridge with plenty of milk or muesli with yoghurt and stewed fruit.

 

Everybody I know is used to seeing me with my sippy water bottle, it is vital if I get into a conversation.

 

You don't say if you have been tested for Sjogren's, if not you maybe should be because it is so common for people like us to have secondary Sjogren's.

 

Best wishes

JudyT

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Hi Carole

I sympathise as I've had dry mouth & eyes for years. It's very inconvenient! I hate the mouth sprays but, like you, never go anywhere without water & little sugar free pastilles which can be bought over the counter. I see my dentist every 3 months as we are at greater risk of decay. He recommended a complete chewing gum.

Eating out can be a bit if a nightmare. Lots of water needed & gravy & sauces vital. I've found tomatoes & grapes useful things to eat with dryer food.

Any more tips welcome!

Best wishes

Liz

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Hi Carole,

 

Someone told me that they have watermelon to suck for a dry mouth. Cheap and easy here for us in Australia, maybe not so for you though.

 

I like your attitude, I just hope people do understand how difficult it is for you

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Thanks everyone for all the suggestions - I am busy trying them all!!

 

Will let you know how I get on.

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You can buy Biotene from a large, well known chemist, it costs but lasts a while. The gel also helps with bacteria which we have to watch because of tooth rot.

 

Christine

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