• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
miocean

Social Security Disability Review Update

7 posts in this topic

You may remember that several months ago I received a letter from Social Security asking for a record of all my doctor appointments since 2010 in order to decide whether a formal review of my disability granted in 2004 was necessary. I received disability immediately due to end stage renal failure.

 

It was very stressful but I gathered all my data to the best of my ability and sent them pages of information.

 

Today I received a letter stating that at this time there is no need to formally review my case.

Yea!

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Congratulations! That's such a relief, isn't it? Back in February I got the short form that I filled out and returned, and a few weeks ago, I got a letter from SSA saying they don't need to do a review. Having to deal with the government is nerve-racking!

 

I find it all to be bittersweet. I'm classified as having very little hope of improvement and I'm so very grateful for the program and benefits but I'm also sad that I am so ill and unable to work.

Share this post


Link to post
Share on other sites

Hi Miocean,

 

What a relief for you to know that your disability won't need to be reviewed......Congratulations!!! :emoticon-congratulations:

It must be a great weight off your mind.......as you say.....YEA!!! :emoticons-clap:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello All

 

Unfortunately here in the UK the current government is on a witch hunt and had targeted the disabled. They are trying to boot as many people off of disability living allowance as possible. In a television interview I saw yesterday the prime minister said that "many of these people" have never had a face to face interview. For someone with scleroderma that's incredibly ominous, as you know we look well but we aren't and you can't show someone chronic pain and fatigue. If an expert in scleroderma says you can't work how on earth can someone else say otherwise?

 

It's grotesque and ridiculous but politically savvy to target a section of society that is so underrepresented. Gee, I hope all that discontinued disability living allowance pays off the deficit.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Congratulations, what a relief, phew!!!

 

Sandy B

Share this post


Link to post
Share on other sites

Amanda,

I don't know what your process is like in the UK but here it is notoriously difficult to get disability upon application. Nearly 70 percent of the applications are denied and it can literally take years to go through the appeals process. At that point, people need to hire disability lawyers and it becomes Dickensian, a la Bleak House (Jarndyce and Jarndyce).

 

I was unable to do the application on my own so I called Social Security and set up an appointment for them to fill it out. (It even took that seasoned professional almost 4 hours with all of the names, addresses, medical codes, etc. programmed into her computer, and I had about 25 percent completed!) I was in agony by the time I left and, while there, I had to take my meds and pain pills just to be able to sit. It was difficult but that was the BEST thing that could have happened. The Social Security employee saw first hand what I experience and I was approved in less than 3 months.

 

So just maybe a face-to-face requirement isn't such a bad thing? Seeing and talking with someone reveals a whole lot that a bunch of paperwork may not. AND it turned out that I was misreading some of the questions and wouldn't have included some really pertinent information. I was so grateful for the interview and assistance. I hope that the changes actually work to the benefit of the disabled in the UK!

 

Julie

Share this post


Link to post
Share on other sites

Hello Teatime

 

I am concerned that with the government's clear agenda the purpose behind the face to face interview is to find reasons to discontinue peoples' benefit, not to provide assistance. What happens if your face to face interview is on a good day and the person conducting the interview has no idea to be aware that you can have good days and bad days? Wheelchair users don't use them all the time so could that person be nailed if they happen to turn up on that day without said wheelchair even though they needed it the day before and the day following the interview?

 

Someone on the UK forum (I think it was that one) said that they had an assessment in which they never stood up or walked in front of the assessor but amazingly the assessor managed to state the person had no problem walking. This is why I think this decision should be made by scleroderma experts only and no one else.

 

My husband completed my first application for me and I sent in an update, off my own back, over a year ago and nothing was changed. What's so scary for many people is that continual threat of a random review. Remember that once this source of income is lost we can't go out to work to replace it.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now