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Good news/bad news?

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After previous posts about not being happy with my care in Halifax, I have taken your advice and after quite a bit of robust persuasion (GP reluctant) I now have my appointment for Leeds! Thanks for all your advice to do so.


Worryingly however, my general practitioner tells me my chest CT scan has signs of ground glass appearance in my right lung? Not sure if this is anything to worry about?

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Hi Inkedup,


I'm pleased to hear that you've got your appointment in Leeds with a Scleroderma specialist.


I have ground glass on my lungs and in my case it indicated that there was inflammation within the lung tissue resulting in fibrosing alveoli caused by Scleroderma. However, I would emphasise that everyone presents different symptoms with such a complex disease as Scleroderma and so hopefully when you have your appointment with your specialist in Leeds, he'll be able to explain the results of your CT scan more fully to you.


Kind regards,

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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