Peggy

Recovering from Gastric Bypass for the Reflux

23 posts in this topic

Miocean I am sorry things feel so bad right now and all I can suggest is that you keep doing what you're doing which is engaging in professional help, being honest about how you feel and always remaining hopeful. Hopeful you say? Yes. If you weren't you wouldn't waste time trying to get better because you wouldn't believe that you could. If anyone can pull it outta the bag it's you.

 

Take care and please let us know how you're fairing.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Everybody,

 

I hve just arrived home from another overnight in hospital finally having the second stage of my SNS. There is lots to read on the forum and I have been having a look at everybody's comments.

 

My stay this time was almost uneventful, and I have to say that the staff were all helpful and kind. I did have some unexpected happenings, the first being that I got a bit dehydrated over the no eating time so when I woke up my blood pressure was very low and my oxygen saturation was unstable. However that was all fixed by drinking lots and having a long time on oxygen prongs.

 

The next thing to go wrong was my medication regime. Every time I am there they manage to mess up my meds. This time I took all my own but that threw them into a tizz too. Anyway, we managed to come to a compromise except that I was not allowed to have my Amlodipine because the BP was already too low - I agree. What I didn't expect was that just one dose was missed and I had a Migraine. I had hoped that it would take longer than that to have an effect. You will appreciate what I am saying Amanda, and to top it off they tried to tell me pain medication was all they could offer me and they KNOW I can't tolerate it. Grrrrrrrrrrr. I try to impress on them that I must have my meds BEFORE I eat but still my breakfast got cold this morning.

 

I really do think that try as they might to understand Scleroderma, it is just too rare here for them to have enough experience of what it means.

 

Anyway, I am home and happy and headacheless now so it is onwards and upwards (I hope).

 

To Sandy and Peggy, I think you are so brave, these stomach things are so horrible and I am living in hope that I don't get any recurrences of what has gone on already this year.

 

Best wishes to all

JudyT

Share this post


Link to post
Share on other sites

Judy, I'm so pleased to hear that you're home again now, despite a few blips with your medication and eating regimes.

 

I hope, as well, that it's onwards and upwards for you.

 

Sandy B, what a truly horrendous and undignified experience for you; I'm so sorry. I do hope that you will start to feel better and that things improve very soon for you.

 

miocean and Amanda; it never ceases to make me feel humble when I realise what you have had (and still have to) deal with on a day to day basis.

 

My heart goes out to each and everyone of you.

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Judy,

 

Welcome home from the hospital. I am glad you got them sorted out for taking your meds. We always try to keep breakfast bars on hand when either of us is hospitalized, as there are so many occasions to miss a meal, or to have to wait a long time for one. They can at least take some of the edge off hunger, in a pinch. And I don't know why, but hunger seems worse for the waiting, when you're in a hospital. Anyway, I'm glad you're home!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi All,

 

Well, had my first bit of therapy on Thursday in the way of my daughter coming to stay and opening up for the first time, how bad last year really was at times. My daughter actually knew and had fought the temptation to go behind my back and have a word with nursing staff. Well after many, many tears it was all out in the open, I do feel better for it, sharing it, but I know that that isn't the end of it, there are still more tears to come....

 

Since the surgery and all the chest problems I encountered, I pursued my chest doctor relentlessly about my breathing and continuous cough and pain. I finally had a phone call from him Friday regarding the latest more detailed scan. On a good note although there is a bit more scarring, it doesn't show any current signs of active scleroderma in my chest and the pleural effusion has improved. What it does show is a nodule on my lung, which probably isn't so good. Fortunately for me the chest consultant has emailed my surgeon who carried out the oesophagectomy and as I am due to see him this coming Tuesday to have the bottom of my stomach stretched, I haven't got long to wait. This could be an early indication of an infection or the start of a tumour. I guess if I hadn't pursued the chest problems then I might not be finding this out until a later date.

 

Trying to keep an open mind until I have some definite answers, but will keep you informed as and when....

 

Regards

 

Sandy B

Share this post


Link to post
Share on other sites

Hello Sandy

 

It takes time for people to be able to let go of their emotions but it's better afterwards. It must have been a real relief for your daughter and you that she did this.

 

I am sorry you have the potential of more bad news hanging over your head and I hope sincerely that you don't get anymore. You deserve good things from now on.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi All,

 

Had the stomach stretch yesterday, seemed to go well. Discussed the possibility of a lung tumour and have an appointment for a Positron Emission Tomography (PET) scan tomorrow. Things are moving pretty fast, but I guess that's better than slow in this case. Feel a bit twitchy, but that's understandable. Will let you know when I know any more.

 

Regards

 

Sandy B

Share this post


Link to post
Share on other sites

Hi Sandy,

 

Fingers crossed for you for the PET scan tomorrow and I really hope it all goes well.

 

Keep us posted!!

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now