SharonE

Old Member returned

4 posts in this topic

Hi Everyone

 

My name is Sharon I am living in Mildura now , last time I was involved in the group I was living in Geelong. We moved up here 3 years ago to the warmer weather and family.

 

Apart from Raynaud's, aches and pains, mild Pulmonary Hypertension, Sjogren's etc, my biggest problem is recurring acute pancreatits. I have had every test possible but about every 3 months for the past 2 years I have very sudden onset of severe pain. Pancreatitis, I spend 5 to 10 days in hospital on IV pain medication and antibiotics, ice only. Then after a couple of weeks rest I am fine again. Is there anyone else having this problem? I would really like to find someone else the pain is horrific.

 

Thank you so much Sharon.

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Hi Sharon,

 

Welcome to our forum. I am sure you will receive many replies from all our friends here at the ISN.

 

Unfortunately Scleroderma Victoria does not have a support group in your area, but by the sound of your most severe of your symptoms,pancreatitis, this is not so common. But believe me someone will have experienced this problem.

 

So glad that you posted with us.

 

I look forward to reading your replies,

 

Kindest thoughts,

Robyn

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Hello Sharon

 

I am so sorry you are suffering with pancreatitis, it is renown for pain and is also an autoimmune disease like scleroderma and it seems that if you have one autoimmune disease you get another at some point! I don't have it or know anyone else with it.

 

I hope there is a long time lapse between attacks for you.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Sharon,

 

Welcome to these forums!

 

Thankfully, I've never suffered with pancreatitis, but my father did and I remember him being in a lot of pain and discomfort with it, so can sympathise with you. Like you, he would suffer severe attacks but he did learn to control it by being very careful with his diet and particularly avoiding alcohol completely.

 

I do hope that your attacks become much less frequent and look forward to reading more of your posts.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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