Jump to content
Sclero Forums
Sign in to follow this  
Jeannie McClelland

A less than stellar year so far!

Recommended Posts

Dearest Jeannie,

 

I am stunned, learning of the seriousness of the 'Super Bug' you contracted :crying: ... Liike miocean, my jaw dropped to the ground!

I just want to take this opportunity to remind you of how very special you are to SO many of us, here, on the Scleroderma Forum; as a community of folks that has gotten to know one another, (thanks to this awesome forum), some of us have gone beyond posting/chatting on the forum. I, for one, have forged friendships with very, very special ladies, with whom I am very proud to call FRIENDS and I count you as one among them, dear friend. Because of all you have done on this very forum, over the years (you and I became moderators at the same time, I want to let folks know, just in case they weren't aware :thank-you-2: ) and then you went beyond the call and took on even MORE responsiblity (which Jo has taken on), to keep all running so smoothly.

The sentiments of those expressed before me (on this thread of yours)...I echo. I am in awe of you and respect you so... You ARE "one tough cookie", as Ann said, but please know that we also realize the seriousness of all you have been/are going through and we are rooting for you and sending you ALL of the love, support, energy and :emoticon-hug: s that you have coming. We DO MISS your presence here SO much, but we will cherish any posts (this one, as well as any future ones) you are able to share.

 

I apologize for missing out on Happy Jeannie Day, but I just wanted to let you know.... We so appreciate your sharing and are SO very sorry you have been SO extremely ill, but hope you are able to "Conquer the Beast" and enjoy that precious grandbaby, as well as life, in a very special and wonderful way, my friend.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I don't know how to thank you for all your kind words, good wishes, and keeping me in your thoughts! It seems I have now developed over-active tear glands!

 

Miocean, you asked if I had any idea where I caught the 'super-bug'. I spent a fair amount of time thinking about this and I think it was in Yorkshire. The family there had been sick just before I arrived and friends came down from Newcastle to see me and one of them was actively sick while she was visiting. I'd like to blame the idiot on the flight back to the USA who was in droplet range of me and didn't bother to cover his mouth during his frequent coughing bouts. Maybe it was him. Who knows? I sure didn't come up with any bright ideas that would guarantee no repeat performances!

 

It's now around 120 days since I came home from the hospital and there have been some ups and downs.

 

I have a partial swallow and the baby had better guard her rice cereal because I can eat it too. Well, actually, I can have anything from thickened liquids to pureed foods. Last night was my first 'solid' food: bangers, mash and beans. No bangers for me, but runny mash and thoroughly bashed beans were pretty wonderful. It's becoming a juggling act to balance nutrition / aspiration risk / and trying to keep the scleroderma-affected gut working. The great thing about the swallow coming back (other than the pleasure of eating) is that I can now take small pills by mouth, which means I will be able to restart Letairis for my pulmonary hypertension (PH).

 

The said PH seems to be progressing~ My last echocardiogram and BNP (a blood test that is an indictor of heart failure) weren't so hot. I'm experiencing more shortness of breath and more difficulty in keeping my O2 saturations high enough. I have PFT's tomorrow and it will be interesting to see the results. (This bit was the downside.)

 

On the upside, I finally made the decision to get my hair cut to a nice collar length bob that takes minutes to make presentable after a shower. Did you ever realize how much time, effort, and energy dealing with your hair takes? Too much! Better things to do, eh?

 

That's about it for now. We're enjoying some cooler weather after weeks of scorching hot and dry weather. You wouldn't believe what it is like when the temperature is 105F (41C) and 21% humidity! We even had some rain on the weekend which helped with all the smoke from the devastating wildfires and gave the firefighters a chance to make progress in containing the fires. We're in no danger here but we do get the smoke and there were days when the visibility was way down.

 

I hope everyone is having a great summer/winter (for all our friends down under) and staying healthy. Many warm hugs to you all.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Jeannie,

What a lovely long letter! So nice to hear you are on the 'mend' we might say. We have been reading about the devastating fires on the news and in the papers here - so sad for those affected. Our winter seems to be much colder than usual and with less rain - cold and clear with lovely sunny days in the North anyway.

 

Doesn't time fly by when you are having fun. All of a sudden you are talking about that new born being on rice cereal my goodness she will be starting school before we know it.

 

Love and best wishes to you from me

JudyT

Share this post


Link to post
Share on other sites

Dear Jeannie,

How nice to hear you are slowly improving as far as you ability to swallow and eat! The PH issue will hopefully improve as well with the start of the medication as well.

 

I am also glad you are safe from the fires, I'm certain when the smoke blows your way it doesn't help with the breathing.

 

Summer is flying by here. Signs of it ending are already showing...the hooded gulls are losing their hoods, all the gulls are starting to get aggressive for food, and the sun has started its southern movement in the sky. Our ocean has been very warm due to the warm winter we had, making it delightful on calm days. I am actually able to go in and swim a couple of strokes before I run out of breath which brings me a lot of joy. We have also had heat near the 100's but much higher humidity. I find it harder to breathe on those days. We have had wicked storms, one referred to as an inland hurricane, with winds over 90 mph. Some people were without power for days in this brutal heat and humidity, but we have been lucky. The lightening has been awesome to watch, I have even seen it horizontal. I am not afraid of lightening but my friend has to hide in her bathroom!

 

Enjoy your granddaughter and go ahead and eat her cereal.

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Hello Jeannie

 

Get some of the good stuff...the baby rice! There desserts are delicious! I remember from my niece and a "sample" of my granddaughter's breakfast when we had her. Guess what, we're going to be grand parents again as the lovely daughter in law is pregnant again! Funnily enough I was thinking they should go for it and it would be great for their current daughter and hey presto! I just hope that we get to see them more than we do now.

 

Haircut eh? I remember your lovely hair but can just see you with a bob. I was thinking about cutting mine back into a bob as well (hubby would be ecstatic) but am liking the length to much at the moment. Although it is harder to wash, brush etc it is actually easier to use straighteners on and when dirty can be put up. As I only wash it once a week at best, once every 10 to 14 days at worst I need to be able to put it up in an attempt to disguise it!

 

I am so glad somethings are improving even if others may not be. You are truly one of the most amazing women I have ever met and I am so glad you're posting again. The forums miss you terribly and so do we.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Jeannie,

 

I'm so pleased to hear from you again and that you're able to eat small amounts of food, albeit that it's pureed and in liquid form. So sorry that your PH and breathing are not so good, though.

 

I bet your hair looks gorgeous in a bob; you're lucky to have such lovely thick hair which will suit the style so well. Actually, I must admit my hair takes very little looking after; I seldom, if ever, comb it (I cultivate the dragged-through-a-bush-backwards look! ;)) and the very damp weather we've been having means my curls go into ringlets, like a middle aged Shirley Temple! :lol:

 

You are truly one of the most amazing women I have ever met and I am so glad you're posting again. The forums miss you terribly and so do we.

 

Well said, Amanda; I couldn't have put it better myself!

 

Here's hoping that you keep improving, dear Jeannie.

 

Much love to you,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Oh Jeannie, so great to read another of your posts :yes:

Yes, we do love and miss you, but most of all, our continued wishes that you continue to improve, to a point of (more) solid food. As for presenttime, I'm just SURE baby wouldn't mind a BIT, sharing with you! ;)

 

I'm SO glad your temperatures have cooled down, where you are; we are in over a month of 90+ temperatures, with at least 100 expected today; however, I am VERY happy to say we received a WONDERFUL rain a few evenings AGO, that was SO beneficial, where the fires in our state, are now fully contained :emoticons-clap: (Note: This is the earliest we've had fires...since 1988)!

I'm thinking you will REALLY love your new bob; it IS the way I wear mine and yet (Amanda), it's long enough, I have the flexiblity to wear it up if I need (for the hot temperatures, etc).

 

Sending Loves and :emoticon-hug: s in endless supply!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Jeannie, we are eager to hear more updates from you.

Your new hairdo sounds delightful, and I'm sending lots of good thoughts your way in hopes you have some continued improvements. :you-rock:

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×