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Kblueeyes

Exercising ?

6 posts in this topic

Hello all,

 

I have been pondering a great many things since researching this autoimmune disorder. I am an overweight individual with morphea and I am on track to becoming a healthier me in just general. Most importantly going to build some muscle. Looked and have planned all the exercises and I have built exercises based on my goal and limits. I know to consult with a doctor with exercise regiments that isn't a problem. The question, I guess, is there any sort of studies out there relating to this condition and building muscle? Mostly I am focusing on the facts that point to that morphea can go below skin into muscle and bone sometimes.

 

Do any studies support this for a positive thing to do or does it aggravate or trigger the morphea? It is healthy to exercise and be an active individual overall which is why I feel so silly asking this. However I have read it isn't good to spark your immune system. Just wondering if there is any studies or documents already referring to this topic. Sorry, if it is silly to ask just so curious. Been looking everywhere but maybe in wrong places.

 

-Kblueeyes

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Hi Kblueeyes,

 

Good on you for deciding to give yourself some goals. As far as your questions are concerned, in my opinion asking is never silly. You have been faced with a situation you would never in a million years have expected and it is not only you who is floundering around looking for answers and ideas. I personally don't suffer from Morphea but have limited scleroderma and for me any sort of exercise is not only difficult to achieve but also exhausting. Hopefully somebody with Morphea will chime in with an opinion about the long term view of this disease.

 

In the meantime, don't stop asking, it is the only way to find out.

 

Best wishes,

JudyT

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Exercise has so many benefits... go for it girl. Dancing in the lounge room (and yoga) is my preference!

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Hi Kblueeyes,

 

I know of somebody who had morphea, causing severe atrophy of her left hip and leg. For over 50 years. And she walked 4 miles every day until she turned 94, whereupon she told me it was just too much, so she reduced down to only 3 miles a day.

 

If your doctor approves, go for it! Just be wise and start small and build up slowly.

 

After all, what's the big rush since you might love it so much you continue long into your golden years, whereupon you might want to cut back a bit.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Kblueeyes,

 

Well, I'm a great believer in taking exercise and have always been a very active sort of person. I don't have Morphea but in fact, I put the success of the treatment I received for lung involvement Scleroderma partially down to the fact that firstly, I was very fit to begin with and so therefore noticed very quickly that there was a serious problem with my lungs and that it wasn't just age and unfitness that was causing the cough and shortage of breath I was experiencing. Secondly, because my lungs were in such good shape to start with the damage caused by the inflammation and fibrosis was minimised and my consultant told me that normally I would have needed O2 and it was only because my lungs were super fit that even at my worst I didn't need to use an oxygen cylinder (not a good look! ;)) One of the things I didn't ask my consultants was if I could still go to the gym, as I was afraid they would say I couldn't!!

 

The only thing I would advise is obviously try not to overdo it and only exercise to a point where you're not overtaxing yourself. I soon learnt that it was no good trying to work out at the rate I did before I had Scleroderma, as there was no earthly use in making myself heave, so I have tempered the exercise I do now. Also exercise does put your immune system under a bit of a strain, so be careful not to push yourself if you are suffering with any infections or are feeling a bit under the weather. We have got some more information on exercise on our medical pages which I hope you'll find interesting and helpful.

 

I can recommend Zumba Dancing which is great fun and not very strenuous; it does require a fair amount of co-ordination as I found much to my own discomforture, but having done it now for about 9 months I've just about got the hang of it!! :lol:

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Kblueeyes

 

Oh, try the muscle building (as agreed by your doctor blah, blah). Many years ago when I went to the gym 5 days a week for 1 & 1/2 to 2 hours a day prior to work and I focused on building muscle, legs and butt in particular and let me tell you it was AWESOME! Getting onto a weight machine and pushing more than the man previously on it was AWSOME! I went to my sister's gym and used the leg weight circuit and she had to put all of the weights up as far as they would go! AWESOME! Now I can't walk...but hey! Take Shelley's point and make the most of what you can now and enjoy it!

 

Your point about NOT encouraging the immune system is correct but I didn't think exercise did that? You'd want to avoid any supplements etc that claim to boost the immune systems. That would be like asking the bus to run you over faster!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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