atkinsc

Tendonitis

21 posts in this topic

Hello Lynn

 

Welcome to the forums! Because scleroderma is such a complex and varied disease it is extremely common to have its symptoms confused with another more common disease and I think that this mistaking of symptoms is more common in scleroderma that other illnesses. One of the contributing factors when it comes to difficult diagnosis.

 

What type of scleroderma do you have and how long have you had it? I have both localised (morphea) and systemic (diffuse) so I have a great time as you can imagine!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Lynn,

Welcome to these forums!

I can understand how with hindsight you can relate a lot of your symptoms to Scleroderma. I suffered with bilateral Carpal Tunnel syndrome at least a year before I was diagnosed with Scleroderma and because it's a very common operation I really didn't connect it with the disease until quite a time afterwards. Likewise with Raynaud's, which I'd had for several years.

As Amanda has said, it really is a most complex and difficult disease to diagnose, even for the average rheumatologist, which is why we do recommend that if possible our members consult a Scleroderma specialist.

I'm sorry to hear that you've developed tendonitis in another finger; it must be excruciating for you and I hope you can get it resolved.

Now you've joined our community please do keep posting and tell us a little more about yourself.

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi All,

 

I have also recently been diagnosed with Achilles Tendonitis, and started physiotherapy last week after increasing pain since last summer.

 

I'm on first name terms at the physio department, as I have bursitis in both hips, tennis elbow, stiff hands, frozen shoulder and of course its all due to the systemic scleroderma (thanks a bunch!)

 

Ice is the best thing to relieve the tendonitis pain, but when the doctor says "try not to do too much" I was going to ask if they supplied domestic help and a chauffeur on prescription?!!

 

Recently been diagnosed with Vasculitis after a bleed into my left eye. So that brings my autoimmune count to about a dozen! It wears me out to list them all whenever I see a new doctor!

 

Keep smiling!

Debs

Share this post


Link to post
Share on other sites

Hello Debs

 

If you don't have it, the disease don't exist! Seriously, I am sorry you've got more physical issues to deal with, the eye problem must have been very scary for you. What does this mean for you in the future?

 

It's good to see you post again, you're always so encouraging even when things are tough for you...take it easy eh? Hmm only if someone is available to do the 101 things you do everyday!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, I too have had tendonitis in my feet on and off and when it's bad it makes me unable to walk my general practitioner never mentioned it could be related to my systemic sclerosis. I have also had it in my wrists and hands. I've never mentioned it to my consultant as she always dismisses any of my symptoms; as she sees it, smaller symptoms as nothing to do with systemic sclerosis (SSc), but when you read information about them they clearly are. But as she has never treated a patient who has had this before, I'm never very confident in her and find my general practitioner more knowledgeable and willing to do her best compared to the hospital where I seem to be ushered in and out at great speed.

 

Diana

Share this post


Link to post
Share on other sites

Hello Diana

 

When you finally see a scleroderma expert you'll be amazed at what scleroderma is actually doing to your body and how many symptoms you can blame it for. It's totally liberating!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now