Update on me

2 posts in this topic

Ok, so I know you're not all at the edge of your seats wondering what's up with me. I just find I can spill my thoughts to you when I need to.


I have an MRI for my thighs in a couple of weeks, and another EMG in a month (I hope it doesn't hurt as much as the previous one!). I saw a neurologist the other day who thought I likely had migraine auras (without the headache, which I'm grateful for), but wants to do a brain MRI to rule everything else out first. Although the fact that I had these going on since I was a kid makes it sound like the auras - if it was something more serious, something would've happened by now.


And I currently have three finger ulcers, two of which are pretty painful...if I hit them on something (which is inevitable for a finger), it's sooooo painful! They showed up after I started the leflunomide, so I'm going to call the rheumatologist tomorrow to see what she thinks. Because if they're related, I don't think I want to continue this med. I prefer sore joints over finger ulcers (not that the medications are helping much with the joints anyways).


Anyone else find certain medications increase finger ulcers?


Diclofenac seems to take the edge off the joint pain (not by too much, yet, so I have to decide if it's worth putting through my liver).


Anyways, that's me in a nutshell lately. I have to go to bed now. :emoticon-insomnia:

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Hi Amberjolie,


I'm sorry to hear about the finger ulcers; thankfully, I haven't suffered with them, but I have had small splits and cuts around the tips of my fingers and I know they can be excruciating if knocked accidentally.


I'm glad the diclofenac seems to be helping you; I think with most medications it's a choice between the benefit of the drug against any possible problem with side effects.


I hope that your MRI and EMG goes successfully and doesn't prove to be too painful!


Kind regards,

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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