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Sandy B

Radiotherapy

7 posts in this topic

Had my first lot of radiotherapy yesterday, I'm glad to say it all went well and I don't know what I was making all the fuss about. It took longer to clamp the face mask to scanner and make sure it was in the right position than it did for the radiotherapy itself. So I promise no more whingeing about it, just got to wait for it all to kick in, but no more going out in the sun for me, ever, can I whinge about that?!!

 

Regards

 

Sandy B

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Hi Sandy,

 

Thanks so much for letting us about your radiotherapy session and I'm really pleased that it wasn't the ordeal that you were dreading and that everything went well.

 

Dearest Sandy, feel free to whinge about absolutely anything you choose!! ;)

 

Fondest wishes,


Jo Frowde

ISN Assistant Webmaster

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Hello Sandy

 

I am so glad the first round of treatment wasn't bad and I hope that continues. Enjoy as much as you can whenever you can whatever it may be, apart from the sun. Why no sun by the way, why does the treatment clash with the sun?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

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(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda.

 

Apparently radiotherapy makes your skin very very sensitive and sore, so exposing the treated area to the sun is a big no no and it is a permanent feature! As I'm only having radiotherapy to the brain, just the scalp area, then a sun hat will come in handy, but trust me to start treatment when we have our first bit of sunshine for months!!!

 

Regards

 

Sandy B

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Sandy that's just bad timing! Thanks for explaining. I know you can't mix sun and mycophenolate or naproxen but I didn't know about radiotherapy. Ironic that a group of people that commonly suffer with low vitamin D have medications that necessitate avoidance of the sun. Yeah that's about right!

 

Take care of yourself.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Dear Sandy,

 

I've been away from the site for a long while and just logged on today. Very sad to hear your news. Really wanted to write a few words. It's hard to know what to say. You have always been a positive and valuable member of this forum. I wish you timeless bliss and tranquillity. When you get there say “oy … I want a WORD.”

 

Relieved for you that the radiotherapy wasn't as dreadful as feared.

 

The way you have handled yourself has shown me I can learn a lot from you. Sherrytrifle

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Hi Sherrytrifle.

 

I think I'll be saying a lot more than 'Oy, I want a word with you', I think I shall give him a lecture, hehe!!! I wasn't ready to go yet!!!

 

Regards

 

Sandy B

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