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Amanda Thorpe

Morphea - localised scleroderma

4 posts in this topic

Hello All

From spending time on the forums I've noticed that most people post about systemic forms of scleroderma as opposed to localised forms of scleroderma. As I have both localised and systemic scleroderma I thought I'd give a shout out for the localised forms, in particular morphea, as that's the one I have.

I have uploaded onto the Sclero Forums Photo Gallery various photos of my morphea patches some of which are rather large. I think in total I have over 20 patches on my legs and there seems to be a new one everyday. The ones on my thighs are the largest and they itch unless I keep them moisturised.

Unfortunately the patches have disfigured my legs, when I'm outside my legs are covered and will always be, even when morphea stops progressing the patches remain as the damage is done. Have a read of our morphea pages to find out more about this form of scleroderma.

Let's not forget bullous morphea, a rare, blistering form of morphea, the link takes you to a picture of my calf two (?) years ago and here is a photo of the same calf now where the bullous morphea has burst and ulcerated.

Look at what linear scleroderma can do, it's a line of thickened skin but it can affect the bones and muscles underneath it limiting the motion of the affected joints and muscles.

What I find amazing about scleroderma, amazing as in can there be such a relentless, unforgiving disease, is that even the localised forms, that don't affect the internal organs or reduce life expectancy, can disfigure, disable and devastate.

 

Have a look at our series of Scleroderma Videos , especially the videos about  localised scleroderma, morphea and linear.

Whatever form of scleroderma you have I hope you'll find these forums are the place for you and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Great photos and how well they show the disfiguring blemishes and ulcerated skin caused by Morphea and Bullous Morphea. To say that it must be very sore and painful is, I think, understating the complete horror of the whole condition of localised Scleroderma.

 

I'm looking forward to seeing your videos on the subject.

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda

Great job in explaining along with the pictures provided. I, too, can only imagine the pain associated with them. I have developed one patch which is now burnt out on my face. I also found the itch was unstoppable but mine pales in comparison to the bullous form. Jo's statement is ever so true.

It is also good of you to educate us along the way, thank you!


Sending good wishes your way!

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Thank you Snowbird! I am so glad that nothing has appeared on my face, either systemic or localised, I am exceptionally grateful.

How long did it take for your patch of morphea to burn out?

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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