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Amanda Thorpe

Gastroscopy, have to stop medication 10 days before?

21 posts in this topic

Hello All

 

So I am having my first gastroscopy :emoticon-dont-know: and second colonoscopy :crying: this month and have to stop omeprazole 10 days before. What am I supposed to do about my reflux during that time?

 

I have stopped taking hydroxychloroquine (plaquenil) as of now, off my own back, because I am sure it makes my reflux worse/causes stomach pain and I can't afford that if I can't take omeprazole.

 

Any suggestions as to what to do instead as I know oodles of you have had both procedures! :lol: Any suggestions as to what I can do, if anything, to make both procedures more bearable? :emoticon-dont-know:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

I've never had either a Gastroscopy or a Colonoscopy although the links I've given you does explain the procedure of them. Unfortunately, it doesn't suggest an alternative to combat the heartburn once you stop taking Omeprazole. Although I can't help you with more information about the processes from my own experience (I wish I could! ;) ) I expect our members will be able to give you some advice.

 

What I can do, though, is wish you the very best of luck with both procedures and hope that they go as smoothly as possible for you and that you recover from them in double quick time.

 

My very fondest wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

I come into the category of those who have had oodles of Gastroscopy and Colonoscopies and EUS and Sigmoidoscopy and and and. . . . . .

 

The only med I have ever stopped has been aspirin and not even that every time. Are you absolutely SURE you HAVE to stop the omeprazole?

 

You ask what you can do to make the procedure more bearable? I don't find Gastroscopy a problem, only have to stop eating 12 hours before and then I have a lovely sleep while they do their worst!! and wake up a box of birds.

 

Colonoscopy - now that is a whole different thing. I find that really hard, particularly the prep. Changing diet for days beforehand then trying to keep down the liquid prep and stay near the loo and keep sane. Only once I managed to drink as much as the guide book says and didn't throw up more than about twice. Which in itself is a lesson - drink as much clear liquid as you possibly can. Lemonade is fine.

 

I clearly remember my first ever colonoscopy in about 1991 (yes '91!!) 21 years ago!!!. Probably my first experience of being in hospital since I had my tonsils out when I was about 10. I was in a private establishment still run by nuns in those days (albeit not wearing habits any more but nuns all the same). Anyway, as turned out to be usual for me, I had a migraine which I had to put up with and no medication for it. Then when I started on the liquid prep. it all come up woosh all over the floor. I was in hospital already so things have really changed since then. Now we do the prep at home and have to clean up our own messes not surprising really when I remember the fuss that I caused.

 

On thinking about it, probably they want you to stop the Omeprazole so that they can see your tum at its worst, but that is tantamount to torture in my opinion. Suggest your doctor takes a drink of acid three times a day and see how he likes it!!!!

 

My husband had a combined procedure once and flew through it without a qualm - he can't see what all the fuss is about. BUT he doesn't have Sclero does he?

 

Good wishes and best of luck.

Judyt

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Just to keep the record straight - in case anybody is interested - the most interesting and long winded "Gastroscopy" I have endured was a TOE. Trans- Oesophageal Echocardiogram. I was in the hospital for a Valvoplasty on my Mitral Valve and pictures from this angle were needed for that.

 

My oesophagus is not in the best condition for such things and it took a very long time for the Tech. to get some useful pictures. Afterwards I had the most horrendous sore throat I have ever had.

 

Judyt

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Hello Judy

 

Yep, just spoke to the endoscopy clinic and they said omeprazole clouds things if they have to take a biopsy, it makes everything turn up negative? Can't have ranitidine either. Thankfully my reflux is not that bad so I am sure I can manage 10 days without omeprazole as there are 2 over the counter remedies they said I could use. I did muse to the receptionist how people with severe reflux manage and she said they do. I doubt that and certainly no one with scleroderma, can you imagine Peggy of these forums managing 10 days without her omeprazole or equivalent?

 

Anyone else had experience of increased reflux/stomach pain whilst taking hydroxychloroquine (plaquenil)? Whilst taking it not only did I have to double the dose of my omeprazole but I started to have swallowing difficulties and stomach pain. Anyone else? I'm not sure if I'll start it again.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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It might be that you have to avoid any foods that makes your reflux worse. I couldn't manage 10 days I'd be in agony! Things that trigger it for me are fruit juices, anything fizzy, alcohol, spicy foods. Also avoid milky drinks, people often drink milk to reduce the acidy feel, but it in fact provokes your stomach to produce more acid.

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Hi Amanda, I've had 6 gastroscopies (with biopsies) in the last 3 years and have never had to stop the PPI (Pantoprazole) which I take morning and evening. I did however have to stop the Pantoprazole for a week last year when I had manometry and 24 hour monitoring. I was pretty worried that It would be a week of unrelenting reflux , but in fact was OK - I have had worse reflux when taking the PPI! Having said that, my reflux waxes and wanes and it could just be that I hit a good week. Hope you cope OK.

 

Lizzie

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Thank you all! It's morning No1 without omeprazole and wouldn't you know it I have that lovely acid sensation at the back of my throat! My husband is getting me some gaviscon to try and hopefully that will do the trick!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

I have had both procedures done and was never told to stop my omeprazole. If gaviscon doesn't help ask hubby to get you some gaviscon advance. I don't know why but in the dim and distant past, pre scleroderma, I had crippling heartburn when I was pregnant. Gaviscon was useless but for some weird reason gaviscon advance worked a treat. It's worth a try anyway. Good luck with the 'oscopies and hope the results come back okay.

 

Take care,

Helen.

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Hello All

 

Spot on, Helen, my husband got me some gaviscon advance and so far so good. It's the most relief I've had so far! I also bought the tablets and rennie's and they were awful, in my opinion. The gaviscon tablets have a weird texture that sticks to your teeth, they taste awful and do nothing whereas the rennie's are chalky and just make you spit up the reflux. My recommendation is also gaviscon advance when it comes to over the counter remedies.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

It's the stranger from Scotland! It's great to see that the site is going strong and it's great to see some of the familiar names and Hello to anyone else who is new to me.

In response to your question, yes I have unbearable heartburn and it seems worse since I started the hydroxychloroquine (plaquenil) I am also on 2g Mycophenolate Mofetil daily plus numerous other meds. I currently take 60mg and Ranitidine for the heartburn but it is still bad.

They now want me to stop the Ranitidine because I have a lump on the left hand side of my breast and although not that common in males they think that the Ranitidine could be the cause and messing about with my hormones! So as usual it's a game of risks and benefits.(the horrendous pain in the chest versus horrendous heartburn)

I hope all goes well with your examinations and I will keep in touch.

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Hi Bobby,

 

How lovely to hear from you again!! :emoticons-clap: I've often thought of you and wondered how you were getting on, particularly as you and I joined the forums within two or three days of each other.

 

I'm very sorry to hear that you've had problems from the Ranitidine and I do hope that your rheumatologist can suggest another medication to help you with the heartburn from which you're suffering which perhaps may not have such a worrying side effect.

 

Please don't be a stranger! ;)

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Jo,

Yes it's been too long without keeping in touch and this time I will not become a stranger.

Goodness, it seems such a long time ago that I was a "Newbie" and so many things have happened.( that's for another post as it will be like a 5000 word essay ?? I think I now have a consultant for every part of my body ?

I haven't looked at previous posts to get a catch up, but hopefully you are keeping well and I wish Amanda was not having such a rough time.

As always if I can pass on any advice due to my own experiences with scleroderma then I will be delighted to do so

 

Take care and I will keep you updated x

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