mikerich

Minocycline and calcinosis

3 posts in this topic

One of our members has contacted me to ask about people's experience of the use of minocycline and calcinosis. Could anybody let us know if they have been treated with this drug and how they got on with it?

Share this post


Link to post
Share on other sites

Hi Mike,

 

Welcome to these forums!

 

I've never taken this particular drug myself so can't give you any information from my own experience. However, I've included a link to our medical page on Scleroderma Clinical Trials showing negative results for Minocycline (doxycycline) which does include the warning that Minocycline (doxycycline) treatment has been proven to be ineffective for the treatment of systemic scleroderma by reliable scientific study. I've also included another link to Minocycline to give you more information on the side effects, etc. which I hope you'll find interesting. I believe it is a common treatment which is used for Perioral Dermatitis.

 

Nice to see you on the forums, Mike and do post again!!

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Mike

 

From my time on the forums I have picked up that minocycline is no good for scleroderma and can cause serious, unpleasant side effects, Jo's given you links above.

 

Please also tell your member that generally, there is no treatment required for calcinosis, although surgical excision is sometimes done for extensive or very painful calcinosis. Many people post about calcinosis, how painful it can be and how difficult to deal with but unfortunately there's no cure and no real treatment for it.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now