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Teatime

Underwear!

33 posts in this topic

Does anyone else have a problem with rashes from underwear? My skin has become increasingly sensitive and doesn't handle anything like latex or nylon well at all. A number of years ago, I started to break out in horrible circular red rashes when I moved to a warmer climate and my doctor told me to avoid nylon stockings and wear only cotton underwear. That's served me well until now.

 

I have a bumpy rash all around where the leg hole elastic touches my skin. I put medicated powder on it but it sometimes hurts a bit. I'm not sure what to do about this -- I need to wear underwear, lol ! I guess I need to start seeing a dermatologist. My new rheumatologist was surprised I don't have one but the one I was sent to was awful. In fact, I never even met him! His nurse practitioner did all of the medical stuff because he wanted to focus on cosmetic procedures! She even did my skin biopsies! Anyhow, maybe I need to find a good one who knows something about autoimmune diseases.

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Hi Julie,

 

I expect that the recent hot weather you've been experiencing hasn't helped with your rash and it does sound very irritating and uncomfortable.

 

I would definately suggest that you try and consult a dermatologist; perhaps your new rheumatologist can refer you to one that she recommends?

 

The only thing I could suggest to help with the bumpy rash on the tops of your legs is to make sure that your underwear is very loose and that the elastic isn't tight against your skin. I always wear cotton, not nylon, as you've stated, particularly if the weather is hot and humid, as it very often can be in the UK.

 

I expect we will have other members who can give you some helpful advice as well.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Julia

 

Have you tried french knickers because they don't have elasticated legs, the legs are open, like shorts? Other than that, a dermatologist for sure!

 

Remember that cotton is the best fabric to minimise sweat and sweat causes, or can cause irritation.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Julia,

 

That sure is an interesting question. :emoticon-dont-know:

 

As it happens, many ordinary (otherwise healthy) people can't tolerate elastic or latex, either, so there are online businesses that specialize in selling underwear that is latex-free and elastic-free and all of pure, soft (even organic) cotton. But I am far more intrigued by Amanda's suggestion, as I've never heard of french knickers until now.

 

That said, for autoimmune issues that involve interesting skin phenomenon, like scleroderma skin tightness, you will probably want to seek out a dermatologist who isn't into cosmetic procedures or doesn't specialize only in skin cancer, etc. Your scleroderma expert should be able to refer you to a good one. Usually they are pretty hard to find, nowadays, and often they are associated with major medical university hospitals in some capacity.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Shelley

 

You've lead a sheltered life! French knickers are designed to be sexy little numbers, usually is satin or silk, accompanied by a camisole top in matching fabric. They're perfect to wear with suspender belts and stockings...so I'm told!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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lol Ladies! I'm getting a true education here!

Amanda, I had NO idea what french knickers were! lol

 

Since the onset of Sclero, I've worn cotton panties, for the above named reasons; Another issue I have is profuse perspiration (also known as SWEATING ;) LOL ),which is another reason I wear cotton bloomers, as opposed to the french knickers of days gone by for THIS gal!

As was mentioned, the hot temperatures definitely don't help our already difficult issues, but winter will soon be here, so I'm trying not to complain too loudly!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Ha Susie! Are you trying to tell us you wear granny pants? My sister until she became a Mrs again and Ma still does. Not only are the offening items cotton but they come all the way up, nearly to the waist! NO! Underwear must be cotton but it can still be pleasing to the eye.

 

For the sweating issue, have you tried panty liners? You can change them as often as you like and they help keep underwear fresh. You can get scented ones but they may cause irritation?

 

Take care lovely lady.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Just thought I'd point out that in the U.S. the undergarment being referred to as "French knickers" is usually referred to as "tap pants."

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Thanks, Judith!

 

I've heard of "French knickers" before, but never described as "tap pants"? :emoticon-dont-know:

 

It's amazing what I've learned from these forums!! :o

 

(Mind you, I think I must have had quite a sheltered upbringing!!) ;) :lol:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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LOL, this has turned into a fun conversation! I'm familiar with the term "knickers" because of my English friends. When they came to visit, Nicky was afraid she didn't pack enough underwear so we went to a store to buy some. She really liked a particular brand so the next time I went to England and asked if I could bring her anything, she said the "little knickers with the strappy bits." LOL

 

Anyhoo, the "French knickers" sound like just the thing! I'm actually wearing small pajama shorts now and they're so comfortable but they're too thick to wear underneath clothes, especially the light, thin clothes I wear in our Texas heat. I just might wait until I come to England and Europe and buy them there. They might be less expensive than here if they're popular.

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French knickers and tap pants - all good. I've had some relief with underwear made of Tencel. Good luck.


Kay Tee

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Hi Julia and all you lovely ladies :emoticons-line-dance: well, I've had a a giggle! But on a serious note I see a really lovely dermatologist he's quite dishy (handsome too!) but he's really nice to talk with and has been helpful to me. I've had a periodical carry on with sore rash patches in my groins and at the back of my bra on my back; I thought it was the patch of telangiectasia irritating and making it sore on my back...the verdict was ....washing liquid/powders and fabric conditioners!!! He stated that the chemicals in both 'sit' in the fabrics and when we get warm and moist at knicker leg holes and the like these chemicals can react with skin even if you are healthy, but, our skin is bonkers [his term lol] so he said to ....

 

A) save all my underwear up and wash them in a organic, no scents additive free wash liquid /powder and don't go mad in the amount I put in!

B) set the washer to do an extra rinse programme, to make sure it's all washed out.

C) buy a good barrier cream and apply it to my groins every morning after my shower regardless to form a barrier between the pant leg and me to avoid rubbing and getting sore and use a pantie liner and change frequently to stay fresh and dry, and if it does flare up its probably fungal as it's a 'warm moist' place and to use a antifungal cream that will clear it up in 24/48hrs

 

He also said because of the immune suppressant drugs (prednisolone etc which I take) leaves us more susceptible to these issues ie candida and just to take as much care as I can, and not to feel that I'm dirty or whatever my mind tells me I am ..just to treat it if it needs treating and to prevent it if I can!!

 

Hope this helps and thanks for raising the topic as I'm sure all women sick or well have these issues from time to time...ahhh to be a woman eh!!

 

Hugs,

Lynn

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I have found that because of the calcinosis on my buttocks, right at my underwear line, that certain things really bother me.

 

Like my bathing suit bottom from last year since I've gained some weight ! :) The new one is much more comfortable.

 

Help, I think my underwear is shrinking. :lol:

 

miocean


ISN Artist

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Hi Miocean,

 

Help, I think my underwear is shrinking. :lol:

miocean

 

Yes, I can relate to that......funnily enough all my clothes seem to be shrinking? It must be to do with my washing powder!!! ;) :P


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Ladies

 

Fabric softener is a NO! NO! for people with skin irritaion(s), whether used in the washing machine or tumble dryer. I stopped using it a few years ago, after being tipped off to do so by Jeannie McClelland, and it made a difference for sure.

 

As funny as the topic is, the irritation isn't, particularly in "that" area, it's not like you can have a discreet scratch after all.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Miocean,

 

 

 

Yes, I can relate to that......funnily enough all my clothes seem to be shrinking? It must be to do with my washing powder!!! ;) :P

I think I'm using that very same brand!!! Fancy it shrinking undies in both the UK and the US!!! I wonder where else it's making mischief?! :) Seriously, though, I've bought some "boy shorts" undies, as they're called here, and I hope the switch helps!Julia

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I have been so sick the last few months I ran out of clean undies. Even the disposable grandma panties they gave me after giving birth lol! I just can't find the strength to do our laundry. Sigh.


Diffuse Scleroderma Diagnosed March 2009

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Hi Kathy,

So sorry to hear you have been sick. Happens to all of us I guess but a bit of sympathy doesn't go amiss. I hate it when it happens and I get so far behind with things. My husband is really good and helpful but he needs to be told (asked nicely) what to do and sometimes I forget where I am up to, so then he complains that if only I had said something he would have dealt with it. Oh dear! never mind.

 

Hope you get on top and catch up with your undies soon!!

 

Best wishes

JudyT

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Hello Kathy

 

I have a pile of laundry calling me as well and I insist on doing it. Laundry is the one job I never gave over to my husband or mother and have been doing it since diagnosis. Don't know why laundry is the one task I refused to relinquish? Hope you get yours dons before me!

 

Take care.

 

Hello Judy

 

"I can do it" is a phrase my husband is well accustomed to as I struggle on until I can't do it and then hubby takes over musing he might as well have done it to start with!

 

Take care.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Well ladies and gents. I'm back.

 

I suffer from vulvar and rectal lichen sclerosis (scarring of the vulva and rectum) Now we're talking fun (not).

 

I consider myself an expert on panty advice. :) I have to deal with some issues in that...erm, realm so here we go.

 

1. Only and always cotton. Not a nylon or silk WITH cotton crotch, ONLY cotton.

2. Only panties with NO elastic in the legs. Yes, they are out there. Resort to boy shorts if you must, or go without.

3. Speaking of going without, try only skirts. Pants are killer and make too much heat. A little air is good for you.

4. Wash the underwear in clothes soap made for babies and skip fabric softener. Use a little apple cider vinegar as your rinse agent.

5. Wash YOURSELF with non soap products.

6. If you are still menstruating, do not use pads with additives or bleach in them. Buy non bleached products.

 

I hope this helps, any or all of you having issues of this sort.

 

P.S. If you have trouble finding non-soap products or non-bleached pads, you may PM me for brand or store suggestions.

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Awww,

 

Thanks Judy! That bit of sympathy felt great, guess I did need some though I usually dont complain......You too Amanda, I really appreciate it. Yep Kselibrary, got the no panties at all down to perfection :)

 

Warm hugs and sympathy back at YOU all


Diffuse Scleroderma Diagnosed March 2009

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I know we are not supposed to use slang but when it comes to underwear but sometimes it is just funny and you have to laugh when it comes to your private areas. :lol:

 

In this area going out with no panties is call "going commando." I have no idea where this term came from! :emoticon-dont-know: This is fine unless you have slight bowel leakage. :D

 

No matter how well I clean myself after going to the bathroom I seem to always have "skid marks" which are those brown marks on your panties. I even use special wipes. Since my bowels move so many times a day it seems like I go through underwear like crazy.

 

I have also found that my doctors, especially my scleroderma specialist seem reluctant to look at my bottom. After I was diagnosed with scleroderma I noticed I was getting some small hard spots right where I sit. I brought it up with my doctor and she didn't even look. I had so many other issues with renal failure and lung disease that it just passed by. Several years ago when these bumps had multiplied I was able to get her to look at them and she gave a casual glance and said it was calcinosis. A couple of months ago I told her they seemed to be multiplying again and she said the only thing for them was surgery asked me if they were leaking, which they are not, and didn't even look at them. My dermatologist was the same way when I mentioned it to him.

 

I had an MRI of my spine several years ago as I had a growth in my neck that turned out to be calcinosis and the scan also showed boney deposits on the base of my spine. I feel like I am sitting on hard, lumpy baseballs. Oh well, there are other things that could be worse.

 

kselibrary76, you gave some excellent advice. I have surrendered from sexy bikini underwear to comfortable colored briefs to match my outfits (bras, too) but am not ready to go to cotton underwear. However, my crystal ball shows it in my future.

 

miocean


ISN Artist

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