Teatime

Underwear!

33 posts in this topic

Hi Miocean,

 

Help, I think my underwear is shrinking. :lol:

miocean

 

Yes, I can relate to that......funnily enough all my clothes seem to be shrinking? It must be to do with my washing powder!!! ;) :P


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Ladies

 

Fabric softener is a NO! NO! for people with skin irritaion(s), whether used in the washing machine or tumble dryer. I stopped using it a few years ago, after being tipped off to do so by Jeannie McClelland, and it made a difference for sure.

 

As funny as the topic is, the irritation isn't, particularly in "that" area, it's not like you can have a discreet scratch after all.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Miocean,

 

 

 

Yes, I can relate to that......funnily enough all my clothes seem to be shrinking? It must be to do with my washing powder!!! ;) :P

I think I'm using that very same brand!!! Fancy it shrinking undies in both the UK and the US!!! I wonder where else it's making mischief?! :) Seriously, though, I've bought some "boy shorts" undies, as they're called here, and I hope the switch helps!Julia

Share this post


Link to post
Share on other sites

I have been so sick the last few months I ran out of clean undies. Even the disposable grandma panties they gave me after giving birth lol! I just can't find the strength to do our laundry. Sigh.


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

Hi Kathy,

So sorry to hear you have been sick. Happens to all of us I guess but a bit of sympathy doesn't go amiss. I hate it when it happens and I get so far behind with things. My husband is really good and helpful but he needs to be told (asked nicely) what to do and sometimes I forget where I am up to, so then he complains that if only I had said something he would have dealt with it. Oh dear! never mind.

 

Hope you get on top and catch up with your undies soon!!

 

Best wishes

JudyT

Share this post


Link to post
Share on other sites

Hello Kathy

 

I have a pile of laundry calling me as well and I insist on doing it. Laundry is the one job I never gave over to my husband or mother and have been doing it since diagnosis. Don't know why laundry is the one task I refused to relinquish? Hope you get yours dons before me!

 

Take care.

 

Hello Judy

 

"I can do it" is a phrase my husband is well accustomed to as I struggle on until I can't do it and then hubby takes over musing he might as well have done it to start with!

 

Take care.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Well ladies and gents. I'm back.

 

I suffer from vulvar and rectal lichen sclerosis (scarring of the vulva and rectum) Now we're talking fun (not).

 

I consider myself an expert on panty advice. :) I have to deal with some issues in that...erm, realm so here we go.

 

1. Only and always cotton. Not a nylon or silk WITH cotton crotch, ONLY cotton.

2. Only panties with NO elastic in the legs. Yes, they are out there. Resort to boy shorts if you must, or go without.

3. Speaking of going without, try only skirts. Pants are killer and make too much heat. A little air is good for you.

4. Wash the underwear in clothes soap made for babies and skip fabric softener. Use a little apple cider vinegar as your rinse agent.

5. Wash YOURSELF with non soap products.

6. If you are still menstruating, do not use pads with additives or bleach in them. Buy non bleached products.

 

I hope this helps, any or all of you having issues of this sort.

 

P.S. If you have trouble finding non-soap products or non-bleached pads, you may PM me for brand or store suggestions.

Share this post


Link to post
Share on other sites

Awww,

 

Thanks Judy! That bit of sympathy felt great, guess I did need some though I usually dont complain......You too Amanda, I really appreciate it. Yep Kselibrary, got the no panties at all down to perfection :)

 

Warm hugs and sympathy back at YOU all


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

I know we are not supposed to use slang but when it comes to underwear but sometimes it is just funny and you have to laugh when it comes to your private areas. :lol:

 

In this area going out with no panties is call "going commando." I have no idea where this term came from! :emoticon-dont-know: This is fine unless you have slight bowel leakage. :D

 

No matter how well I clean myself after going to the bathroom I seem to always have "skid marks" which are those brown marks on your panties. I even use special wipes. Since my bowels move so many times a day it seems like I go through underwear like crazy.

 

I have also found that my doctors, especially my scleroderma specialist seem reluctant to look at my bottom. After I was diagnosed with scleroderma I noticed I was getting some small hard spots right where I sit. I brought it up with my doctor and she didn't even look. I had so many other issues with renal failure and lung disease that it just passed by. Several years ago when these bumps had multiplied I was able to get her to look at them and she gave a casual glance and said it was calcinosis. A couple of months ago I told her they seemed to be multiplying again and she said the only thing for them was surgery asked me if they were leaking, which they are not, and didn't even look at them. My dermatologist was the same way when I mentioned it to him.

 

I had an MRI of my spine several years ago as I had a growth in my neck that turned out to be calcinosis and the scan also showed boney deposits on the base of my spine. I feel like I am sitting on hard, lumpy baseballs. Oh well, there are other things that could be worse.

 

kselibrary76, you gave some excellent advice. I have surrendered from sexy bikini underwear to comfortable colored briefs to match my outfits (bras, too) but am not ready to go to cotton underwear. However, my crystal ball shows it in my future.

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Miocean, what I worry about is whether or not they will have adult diapers in plus sizes and fashionable sexy designs, before we all converge on the nursing home scene.

 

Because I am not going to submit to those dreadfully plain white lackluster things, without a fight!

:temper-tantrum:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

How funny Miocean!!

 

In my house we say "I'm out there Jerry!", a great line from a tv comedy we watched in the 1990's


Diffuse Scleroderma Diagnosed March 2009

Share this post


Link to post
Share on other sites

Yes, Kathy, I know what you are referring to. :lol:

 

Shelley,

You just gave me a great idea on how to make a fortune. The only problem is, I forgot what it was. :VeryHappy:

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Did somebody mention my name?! Yep, or rather nope, to fabric softeners, especially when washing my undies. I had been looking for tips to deal with sicca syndrome and found that fabric softeners are a real no-no.

 

What's worked for me in the undie department is super-sizing. Since I needed to replace all my clothes after being so sick ( got skinny, woohoo!) earlier this year, the budget all went before I got to even dreaming about new knickers. Y'know, the 4-sizes too big panties don't chafe anywhere! Mind you, I live in jeans so there's not much danger of being hobbled by an unexpected descent of my frillies. :-)

 

My daughter-in-law recommended a particular brand of diaper rash goop and it has always cleared up the rashes in a day or two. PM me for the brand name if you'd like.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

I did, hello Jeannie! Super-size undies eh, hmm, too much like granny pants for me and having mocked Sis & Ma for wearing them in the past... Yes, yes I know I am a Granny and about4 months from now I'll be a Granny again but I just can't get on board with the pants!

 

Does anyone have any tips as to what to do about static cling when tumble drying? Now I no longer use fabric softener, in the wah or dry, I have wicked static cling, you can even see little flashes of blue light and hear the crackle as the clothes touch each other.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now