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Helen

Toe ulcer

6 posts in this topic

Hi Everyone

 

Just a bit of background first. I have Diffuse Scleroderma, Raynauds, Sjogrens and some lung involvement; started in 2006. Was just wondering if anyone has successfully treated digital ulcers. I have one on my second toe. For some reason this toe is often affected by Raynauds even in Summer. I live in Queensland Australia, so we don't have very cold weather. I have had 3 lots of antibiotics and was sent for an xray this week, to see if it has affected the bone, but don't see my doctor till Tuesday. I have been putting Manuka Honey on it every day and wanted to know if anyone knows of any treatment that could be of help?

 

Thanks in advance,

 

Helen

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Hi Helen,

 

How lovely to hear from you again, although I'm sorry it's because you're suffering with a Toe Ulcer. and I've included a link to our page on Treatments For Digital Ulcers.

 

Thankfully, I haven't had to deal with digital ulcers (and I'm hoping that the pleasure will be postponed indefinately! ;)) so I can't advise you from my own experience. However, we do have many of our members who do suffer with this problem and I expect they'll be along to give you some first hand advice. In the meantime I've found a helpful and informative thread on Digital Ulcers which I hope you'll find interesting.

 

I do hope that when you see your doctor on Tuesday, he is able to suggest something to improve the ulcer for you,

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks Joelf, I was hoping not to have to deal with them either living in a warm climate :( . Will let you know how I go on Tuesday.

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Hi Helen,

 

I'm sorry you have a toe ulcer. Manuka Honey is a good thing to continue to use, at least until you see your doctor. (Note to Others: Manuka Honey is a very special one that has antibiotic and healing properties; we are not talking about "regular" honey of any sort.)

 

It usually does take time for digital ulcers to heal. I had many toe ulcers, up until I was diagnosed with Raynaud's and scleroderma, whereupon I realized that I need to keep my feet (and whole body) as warm as possible, at all times. Even though you are in a mild climate, you might still be exposed to cooler days or nights, or air-conditioned places; and you might be more prone to letting your guard down than people who live in harsher climates. Bundling up even a bit more than you may think is necessary, might help with healing because we need really good blood circulation (which can be scarce in scleroderma) in order to heal.

 

However, I must say, in general, there's an awful lot to be said for a milder climate, when dealing with issues like Raynaud's and scleroderma!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Helen

 

I don't have toe ulcers but foot and leg ulcers that have been with me for over a year. The oldest ones make like they're going to go and then, bang!, just open up again. They are so painful and I have had my legs mummified in dressings ever since they arrived and am heartily sick of it, especially as it's been so warm here in the UK. So glad it rained today!

 

Let me know how the honey goes and I really hope it helps and your ulcer goes as quickly as possible and does not return. I'm seeing a vascular surgeon next month and can't wait to see what they say.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thanks Everyone

 

Went to the Dr and the infection is not in the bone, so that is a relief. Am on more antibiotics....last round, and he said to keep using the Manuka Honey. So now just have to hope it doesn't take too long to heal. The worst thing is trying not to bump it (which you always seem to do when you have something sore) and worrying about people stepping on it....so painful.

 

Hoping everyone is as well as can be expected,

 

Helen

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