amberjolie

Brain MRI Recall

19 posts in this topic

I had a brain MRI last Tuesday (to lead to a diagnosis of "migraine aura" by exclusion of anything more serious). I was called by the hospital on Thursday saying that some images didn't come out and I had to go back this coming Monday.

 

Started by worrying, thinking that a tech would have seen if the images were okay, so then wondered if that was just a nice way for them to say they saw something and needed more images. I phoned the receptionist at my old rheumatologist's, because I knew she's pretty good at telling it like it is. She said that she wouldn't worry, and that because they take so many images of the brain, a little blurriness can throw off the whole progression of images. (She also then said that if it was cancer, they wouldn't have let me get off the table the first time, I would've been there a very long time).

 

But I had read that MRI can show vascular issues in the brain, which is always a possibility since I have vascular issues elsewhere (i.e. finger ulcers).

 

Ultimately, the way I see it, is it's better to find something and be able to deal with it sooner than later, instead of not finding out and having problems later. But it is a little nerve-wracking. And my follow-up appointment with the neurologist isn't until the end of the month. So I'll be wondering until then.

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Hi Amberjolie,

 

Ultimately, the way I see it, is it's better to find something and be able to deal with it sooner than later, instead of not finding out and having problems later. But it is a little nerve-wracking.

 

I agree with you as I would always rather know the worst about something and then at least I know what I'm dealing with; the most horrible thing is not having a diagnosis and worrying about the things it might be! I can understand that you're finding it nerve racking. However, the receptionist you spoke to was very helpful and you do have an appointment at the end of the month to see your neurologist when hopefully the results of your MRI scans can be explained to you.

 

I've included a link to our page on Brain Involvement which also has a section on Vascular Disease and Systemic Scleroderma, which I hope you'll find helpful and informative.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Amberjolie,

 

Try not to worry about it, your brain doesn't need any more stress :nervous: (says the queen of worrying!)

 

It might be something as simple as you moved slightly during part of the MRI. The technician that administers the scan can see certain things but the radiologist reading the report picks up more. I have had to repeat scans because of movement on my part or in the case of the CT scan I had last year not hearing the directions, breathe in, hold, breathe out, etc. correctly. The tech picked up on it right then but if not I would have to repeat the scan.

 

Let us know, ok?

 

miocean


ISN Artist

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Got my second MRI today. Well, they definitely are looking at something. Today they didn't say that some images just didn't turn out, they said they wanted "a few more images", and she proceeded to mutter to herself about what areas were being done as she was reading the requisition. I didn't understand the medical terms, but it sounded like there was a particular area they were interested in.

 

And this time, it took about twice as long as the first time.

 

So I'm thinking they're obviously looking at something, but what, I wonder? And is it serious or minor? I'll be thinking about that until my follow up appointment next Friday...don't you hate waiting? :unsure:

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Yes Amberjolie,waiting is the pits. It is so hard not to imagine all sorts of things. I find a helpful thing to do is to immerse myself in something else in the way of a project or something which will take up brain space and leave no room for worrying. For me reading is no good because I find I will have read a whole chapter and taken nothing in.

 

We will all be thinking of you and hope that it all turns out to be something that's nothing.

 

Love and best wishes

Judyt

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Hello Amberjolie

 

That's not a nice situation to be in but maybe they just want to clarify something minor rather than major? Either way there's nowt you can do about it except try not to worry as we all know how scleroderma loves worry!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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Amberjolie,

 

Sounds like it's time for you to call your provider and ask. It is okay you know to ask why someone is testing you over and over and over. :) Doctors often times don't think about how stressful a simple test can be for the patient. It becomes so routine to them. BUT this is your body, and all this worrying isn't good for you. Make a quick call and talk to your providers nurses, and let them know you need a little insight.

 

I'll be thinking of you, let us know ASAP


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Amberjolie,

 

I'm sorry you were recalled for your brain MRI and that you are left up in the air for the results right now. I know how hard it is to deal with uncertainty and I hope your appointment arrives soon so that you can at least find out what the issue is/was. Sometimes they just have to do retakes because the images are too fuzzy to be absolutely certain that there are no irregularities, so they have to take greater care the second time around. The good part of this is that you will be confident in whatever the results are, but of course the real question is, what are the results? Please let us know as soon as you find out.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Ok, I have the MRI results (just not the interpretation to go with them - I see the neurologist on Friday), but I got a copy of the results from my family doctor.

 

Essentially what they saw is a choroidal fissure cyst. From what I can read online about these things, they're usually benign, usually without any symptoms, and mine appears to be smaller than average. And a lot of people have them without knowing it. So it looks to me like that's a good thing.

 

I still wonder though if my dizziness (which I have since realized is only in my left eye, so it isn't dizziness per se but a visual disturbance), is somehow caused by this thing, which is located in or near the region of the brain that has something to do with eyesight. These cysts can apparently sometimes be involved in seizures, but I don't think what's happening with me is a seizure, because I'm always fully conscious.

 

So I guess I'll find out on Friday if the two things are related or not. But I would think that at least the migraine auras I've been getting are just that and nothing else.

 

I feel much better, that's for sure! Thanks for all your comments and well-wishes!

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That is good news so far! I am glad you feel better, there is nothing like an answer to something to ease anxiety.

 

See, all that worrying worked!

 

:emoticons-line-dance:

 

miocean


ISN Artist

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Hi Amberjolie,

 

I'm glad you got the MRI results and that it is "just" a choroidal fissure cyst. I read up on this, too, just now. It sounds like they had to review the cyst in greater detail to make sure it wasn't something more nefarious, which explains your second round of nerve-wracking brain MRI tests. Now it will be interesting to see how your neurology appointment goes.

 

Miocean -- thanks for starting my day out with a belly laugh!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Amberjolie,

 

I'm really pleased to hear that you got your MRI results and that they have relieved your anxiety a little now. I'd never heard of a choroidal fissure cyst either, but I've looked it up and included a link for the benefit of our other members. It does sound as if it shouldn't require any more treatment and hopefully, when you see your neurologist tomorrow you'll feel even better!

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Final update. :emoticons-line-dance:

 

The neurologist said my brain looked perfectly normal, and that cyst was benign, something I was born with, and nothing at all to worry about. Yay!

 

He thinks my next step about the dizziness would be to try an ear, nose and throat doctor to see if it's an inner ear problem. I'm so doctored out, though, I may wait.

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Hi Amberjolie,

 

Excellent news from your neurologist and I'm so pleased for you! :emoticons-yes: :emoticons-line-dance:

 

Certainly your dizziness could be related to an inner ear problem; as I may have mentioned before, my husband suffers with Meniere's disease which affects the ears and he does experience dizziness and nausea (he's also deaf in one ear; very handy for ignoring me when I'm rabbiting on about something!!! ;) :lol: )

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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