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nickisboi25

Cover-up consultation...any advice?

39 posts in this topic

Hi Nickisboi,

 

I hope that your counselling assessment went well yesterday. :)

 

Certainly one of the features of Scleroderma is the over production of collagen; in my case it's primarily in my lungs, but because my joints are also affected, I would hazard that there is an over production there as well which causes inflammation in the connective tissues.

 

I've included a couple of interesting links on Update on morphea: part I. Epidemiology, clinical presentation, and pathogenesis and Morphea which I hope will give you some more information.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Nickisboi,

 

I am so happy to hear you are making progress! Please continue to update us.

 

Funny, just the other day I was looking in the mirror at all the lines on my face from scleroderma, sun exposure and aging and thought that maybe I should go through with one of the procedures my doctors have suggested, even though they could be risky to my beautiful transplanted kidney and then thought, no, this is who I am. When I smile the lines aren't quite as noticeable so I smile a lot, and often get rewarded with a smile back in exchange. :D

 

miocean


ISN Artist

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Hi Miocean,

 

You bring up a very important point, which is to smile. If we are not smiling and gracious to others, it doesn't matter if we have thousands of dollars of plastic surgery, the best wardrobe in the world, and no illness or disfigurement of any sort. So we should never get so distracted, dealing with the challenges of illness and life, that we forget to haul forth the greatest beauty asset of all time: our smile.

 

It's also been proven in studies that the mere act of smiling, even if we don't feel down, makes us feel better! What a win-win for all of us!

 

:yes:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi all,

 

Thank you for your replies ;) The assessment went really well and I'm starting some work with them in January. New year, new start!

 

Joelf, thank you for the links. I will definitely check them out.

 

Miocean, I love that feeling of "this is who I am". That's definitely what I'm working towards.

 

Shelley, I couldn't agree more. The best accessory is indeed a smile. Shame I'm so self conscious of my teeth, but that's another story! Some dental work will be my birthday present to myself next year :)

 

I've also been fortunate enough to be given a place on a heavily subsidized exercise scheme with free personal training sessions. Going for my induction at the gym tomorrow. Getting changed and showing my Morphea to the world...another challenge I'm determined to rise to. Forget fear, it's my time now!

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Nickisboi,

 

What a difference this post is from your first one!

Congratulations on your progress and achievements! :emoticons-line-dance:

 

 

It's not always going to be uphill but for now enjoy the ride. You are doing great!

 

My own personal journey has been along the lines of I'm not doing so great, I'm doing better, I'm not doing so great, I'm wonderful, I'm not doing so great, I'm doing better, I'm wonderful and on and on.

 

The past week is a perfect example:

 

I saw 2 doctors, had 3 tests and everything was great, I was even declared "perfect" by a doctor. Then I had blood work done only to find out my kidney transplant medications levels are off and my creatine is high, doses have to be adjusted and I have to go for labs again before I see my nephrologist this week. I've come far enough along to not let changes in levels upset me as I know numbers can change but they affect my moods so it is a real roller coaster ride right now.

 

Enjoy your personal training.

 

miocean


ISN Artist

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Hi Nick,

 

I'm quite excited to read this thread as I'm looking into cover up makeup myself. ( I have 2 patches of morphea ) How did you get yourself referred for a consultation? Any particular products or tips for applying the makeup?

 

Cheers.

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Hi Achilles,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with Morphea patches.

 

Please do keep posting and let us know how it progresses.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Miocean,

 

Sorry to hear that your last blood tests were not so good. I know how worrying it can be when things fluctuate and I hope that your next labs and appointment with your nephrologist will show an improvement again.

 

:emoticons-group-hug:

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Achilles,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with Morphea patches.

 

Please do keep posting and let us know how it progresses.

 

Kind regards,

 

Thanks for the welcome :)

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Hi all! Thank you for your replies. The gym induction went really well, seems like a nice place. That being said I got ready to go for a session on Wednesday then found myself having a mild panic attack at the thought of exposing my Morphea and the potential judgement that comes with something as normal as a guy taking his top off to get changed. My friend made an interesting comment, "there's no courage in the absence of fear". I'm gonna be courageous and get in that gym in the new year if I have to cry my eyes out and shake so bad I can't keep still! Regardless of anything my dreams are going to come true!

 

I'd also like to extend the welcome to Achilles. My consultation for the makeup was arranged through my doctor. I live in the UK (London to be exact) so I don't know if that's any help to you based on where you live. I can send you a more detailed private message if you like with brand names and more information. Quite a lot of info in this thread in previous posts but still happy to help more if you wish.

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Hi Nickisboi,

 

Congrats on getting enrolled at the gym. That's a nice, healthy step in the right direction because exercise is beneficial for most of us.

 

You know, if you feel headed for a panic attack over attending the gym, you can simply use your makeup. Only very rarely will I head out the door without my face makeup, and I always cover up my neck scar, either with makeup or clothing. Not because I'm ashamed of it or embarrassed by it or even obsessed with it, but only because I can, and it allows me and others to focus our attention on other things. It doesn't entail any emotions, any upset that I have a scar to hide, not even any pride in having a cool scar to show off. And certainly, its not my only scar, by far. Probably other people wouldn't even notice it, because it is probably a thousand times more noticeable to me. But who cares? It's my scar and I can do with it what I like, show or hide, as I please.

 

Frankly, if it were me, I think I would separate the whole gym thing from the whole morphea thing. I would make a plan to wear makeup coverage for the first year at least. Get hooked on getting in shape first. The endorphins from a good workout may help with your overall anxiety, and then it might be a natural transition instead of a forced one, probably just one day accidentally forgetting to put the makeup on, only realizing it later on, and then coming to the grand conclusion that the morphea doesn't matter a whit, either to you or to anyone else. Of course, then you realize that all the worry about it was totally wasted time and effort and you feel bad about that for about five minutes of even more wasted time and effort, and then you decide it doesn't matter -- because you are still floating on endorphins from your workout and better able to handle everything.

 

So try not to throw the baby out with the bathwater. You don't need to overcome the whole body dysmorphic disorder at once. It's perfectly okay to heal gradually while you are getting healthier. But however you approach it is perfectly dandy with all of us, as we'll support you all the way in healthy decisions.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Shelley,

 

Thank you for the really thoughtful reply.

 

Endorphin's! Hearing that word a lot from my friends. I'm sure once I get going I'm gonna love it...it's just getting going. I'd like to not use the makeup for the gym at all but maybe I'm just being too hard on myself and thinking I'm Superman. We'll see how I feel but like you said, the choice is all mine. Sometimes I forget that. It's so easy to feel like this disease takes all your choices away from you by being essentially, uncontrollable in itself, but you've hit on a very important point that some choices are still mine...and forever will be :)

 

Forgot to add, I've posted a picture of my Morphea in the 'Skin Involvement' album ;)

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Hello Achilles

 

Welcome to the forums and sorry for my late reply! I also have morphea patches, mine are on my legs and I have over 10 of them, some of which are bigger than the palms of my hands. As I also have systemic scleroderma I have not been able to pay them much attention.

 

I hope you get on well with the make up, let us know won't you!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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