• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
chockers

Raynaud's Phenomenon

5 posts in this topic

Raynaud's

 

I've been told by a fellow sufferer that she no longer had it, but used to have it .

 

So in some cases does Raynaud's get better ?

 

Christine

Share this post


Link to post
Share on other sites

Yes Christine, it would seem so to me. I had terrible Raynauds starting in 1966 when we were in England on our OE and it continued unabated until suddenly about 2 years ago when I realised that it was gone. I still feel the cold and I still always take a coat or jacket from force of habit, but even when I have made a deliberate attempt to induce an attack, nothing happens. I do still take the same medications I was taking, because I get Migraines and the Amlodipine I took for Raynauds relief also stops the headaches.

 

Although, as an interesting side issue, I also take enteric aspirin every day and I know now that the aspirin has a role to play in stopping the migraines. Last week I had to have a Liver Biopsy and to try to minimise the risk of bleeding to death afterwards I gave up taking aspirin for almost 5 weeks. I was told the aspirin affects your clotting time for at least 4 weeks so to be safe I gave myself 5 weeks grace. Anyway, the first day without aspirin I had a headache and every day for 5 weeks was the same until the day after the biopsy when I took my aspirin again - and poof no headache!!

 

I wouldn't hold my breath about the cessation of Raynauds though Christine because I am a tad older than you are I think so you might be waiting quite a long time.

 

Best wishes

Judyt

Share this post


Link to post
Share on other sites

Ha ha Judy, you might not be older then me. I still get Raynaunds from changes of temperature but indoors it seems better.

 

Christine

Share this post


Link to post
Share on other sites

Hello Christine

 

I guess it's possible for Raynaud's to improve then, it certainly did for Judy! As far as I am aware though there is no usual pattern of improvement associated with the disease but rather deterioration.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Christine,

 

I must admit I haven't noticed any improvement in the Raynaud's with which I suffer; in fact I think it has deteriorated a little over the last 3 years since I was diagnosed.

 

However, there are quite a few things you can do to improve the symptoms particularly outside when it's cold and in supermarkets when you're near the counters with air conditioning.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0