mvbmlg224

My 7 year old girl has morphea. Treatment options?

3 posts in this topic

Well my 7 year old girl has morphea on her lower arm and on and around her pinky. The doctor has gave us two options for treatment, just looking for any that has dealt with this in younger kids. And I wanted to know what the side effects and and pros and cons of both treatment options!

 

Thanks so much any input would be great! I just don't want any crazy side effects but we need to get her treatment and can't just hope it goes away, because its not! Thanks!

 

THE SECOND OPTION IS THE METHOTREXATE (ORAL THERAPY)

 

THE FIRST IS THE LIGHT TREATMENTS (UVA-1) 3X A WEEK FOR 35 TREATMENTS

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Hello, and welcome to Sclero Forums. I'm sorry your daughter has morphea and send my best wishes to both of you.

 

It is my understanding that they are now recommending UVA1 Phototherapy as a first-line option for morphea. The major side effect of that is that your daughter will get a tan, and have a slightly increased risk of skin cancer. There are no needles and no medication side effects. The treatment sessions take mere seconds and are entirely pain free. If I had a little girl and she had morphea, that is the first thing I would try.

 

I am currently taking UVA1 treatments for diffuse scleroderma skin involvement. Although I have an entirely different type of scleroderma than your daughter, UVA1 is being found helpful with a very wide range of autoimmune and fibrosing conditions. I have 3 treatments a week, and each session is a matter of mere seconds. They give eye protection to wear, and it is just like standing up inside a tanning booth. It doesn't hurt in the least bit, and they are very careful with the settings (they will test a small patch of her skin first to make sure she doesn't get sunburned.)

 

I would personally pick this over methotrexate shots, and their often awful side effects, any day of the week. Please read more on our Morphea Treatments page, and decide for yourself.

 

Please give your daughter an extra hug, just from me!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Mvbmlg224,

 

Welcome to these forums!

 

It must be very worrying for you that your daughter has Morphea and especially the effects of the treatments she has to undergo.

 

Shelley has first hand experience of UVA1 and I've included our link to Methotrexate which I hope will give you more information. We have other members whose children are suffering with Morphea and it's possible that they will be able to give you more advice. I've also included a link to one of our Patient and Caregivers stories, Jo: Mother of a Child with Morphea Scleroderma and I hope that you'll find it interesting.

 

Now that you've found our forums, please do keep posting and let us know how your little girl is progressing.

 

:emoticons-group-hug:

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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