• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
nickisboi25

Just want to say thank you

5 posts in this topic

I just wanted to take some time out to say a huge thank you to everyone on these forums.

 

Before I found here, I felt like the only guy in the world going through my problems. You honestly don't understand how much it's helped just having people there that I can talk to and who actually understand what I'm going through. I don't feel so alone anymore.

 

It's been a very difficult year with my personal problems and I've still got a really long way to go. In all honesty I still hate my morphea marks when I see them in the mirror and still long to be just like every other "normal" guy. I'm convinced they're getting worse but I actually don't know if I can trust what I see in my reflection anymore. I do honestly feel bad being so superficial when there are so many people on this forum who have to deal with more than me. But if I can't be honest on here, then where can I.

 

I'd like to wish everyone a beautiful holiday season and if I don't post on here for a bit, a happy new year. I still haven't lost sight of my goals and one day I'll inspire someone the way so many of you have inspired me.

Share this post


Link to post
Share on other sites

Hi Nickisboi,

 

I'm so pleased that you're feeling more positive and not so isolated and may you continue to improve during 2013!! :emoticons-clap:

 

Season's Greetings and a Very Happy New Year to you and all our lovely members!!


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Nickisboi

 

Thank you for coming onto the forums and sharing such difficult issues which have no doubt helped others by reading them. You're absolutely correct, we think we're the only one until we find out we aren't and one of the many great things these forums do is enable people to find out they're not alone.

 

About the morphea and whether it's changing or not, what about measuring it or taking photographs of it? The nurses measure my ulcers and take photos of them to monitor their progress, it's a good way to keep track of things.

 

Have a great Holiday and may you continue to make progress toward your goals.

 

Take care and keep on posting!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thank you Joelf and Amanda ;)

 

Amanda, as for monitoring the Morphea, I'll be taking pictures of myself every month to see what progress I'm making at the gym. So I guess I'll have no choice but to see the Morphea too and if it changes or grows. I know that I can see my hard work at the gym in those pictures and not just the marks on my skin;ie my positives aren't clouded by my big negative.

Share this post


Link to post
Share on other sites

I know that I can see my hard work at the gym in those pictures and not just the marks on my skin;ie my positives aren't clouded by my big negative.

 

Hi ,

 

I'm not sure if I welcomed you before, but *hello* and best wishes for this Holiday season to you, too. :)

 

Six years ago, my son was 18 years old, when hit with esophageal dismotility and other aspects of sine scleroderma/UCTD. One of the worst issues we had to deal with was the autoimmune induced depression. The same changes occurring in your body can also affect the brain chemistry. Exercising increases Endorphins, which make you feel better and have a good outlook on life. If you should ever feel that going to the gym is not having the same affect, or you decide to stop at the gym, please don't hesitate to seek professional/medical intervention for possible depression related to the autoimmune issues.

 

:emoticons-clap: :balloons: Have a safe, fun, and relaxing Holiday season & Happy New Year to all

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now