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OK So Where Have I been?

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Sorry for the short re introduction earlier today, my life really is run at 100 mph.(I chug along like a snail though.)


Back home, light up the tree, put the fire on and then wonder what time the family will be home for dinner.


I've had just one Raynaud's attack today, getting into my car, so I spent the majority of the journey shaking my hand and heater on full blast.


The winter so far has been very kind much to my content and the radio station is mega hot in Winter and unbearable for mere mortals in Summer, for me it's sanctuary and a double dose of pleasure in that the young guys all walk around in shorts - how lucky am I?


For my sins and for those that don't know me, I began to volunteer at our local radio station 5 whole years ago. Since then I moved through the ranks to the role of director of Community. The job is unpaid but worth a fortune in the confidence and warmth it has given me. I'd really recommend it to anyone but of course it's just that taking the plunge!


If you are an incessant talker of the old trash like me you'd be well suited. Not only do I think I'm mad, the whole of the town and several thousand people do as well! I can live with that. If you have Sclero you can live with anything.


"The system has crashed again Babs" was the cry as I barely walked through the door and several people were rushing around in blind panic.


"How long has it been off" I enquired. "Just now and we don't know why?"


Why panic ensues I really don't know. It's a radio station and it's run by computers and Geeks who think they are computers and so on. The show must go on! I casually unpacked my headphones and whilst I'm writing this line my phone is ringing - Hang on .......


Ah yes now where was I, oh yes pandemonium. My headphones unpacked and oblivious to the expletives around me. All of a sudden

"Ureka Yeay! - we have Airplay" Was the cry. I didn't doubt it for one second. The computer had crashed and a bit like me took it's time to get up and running. It's small wonder that it crashes. 50,000 songs plus on the database from Dolly Parton, Black Sabbath to Lady Gaga and perhaps a bit of jibberish as well.


"It's all yours Babs"


The studio was warm and cosy and the hot seat really was hot. With headphones plugged in and my log in front of me (Log is my show) I opened the Mic to the weather bed playing out " Misty Fog Patches with some drizzle and feeling quite mild for the time of year, temperatures in or around 12 degrees that's 54 degrees Fahrenheit and you are bang up to date with your local weather"


My first song - Dandy Warhols Bohemian like you! I was away and on air.


My fingers had warmed up, my feet snug as a bug in a rug and nobody knows the personal horrors I have seen and lived through in my recent past. I never give a thought to the two years on and off that I lay in a hospital bed almost fighting for life nor would I wish to. I never talk about it for fear of retuning to that hospital smell and being unable to do what I love doing now. To be quite honest it scares me to death to even think about it so I'd rather not.


Back home now and I'm still working. That phone call was from a Community Group wishing to join me on my show. I never say no so next week I will have a studio full with Guide Dogs for the Blind, a charity here in England. Dogs as well. More the merrier I say!


I hope everyone is keeping as well as they possibly can. I'm doing great, well you know my secret!

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Babs, it is delightful to hear from you and to read your update! We have really missed you. My goodness, you have been busy and I'm thrilled that you are enjoying your radio work so much.


For new members, Babs is one of our ISN Bloggers and we hope she will be blogging for us some more in the future...in between her hectic schedule.



Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Ooh yes, Babs, I've enjoyed reading your update very much and I do hope that you'll be able to let us have one of your super blogs in the future!! :emoticons-yes:




Kind regards,

Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Thanks for the update on you Barbs. I am so glad to hear you are doing so well and loving your radio job. I cannot believe it has been 5 years! I am looking forward to hearing more news about you, your family and your farm critters, not to mention the infamous hole in the wall (for those who have not read Barb's blog - the 'hole in the wall' is not a wild west gang but is nearly as famous.)


Hope you find some time in your busy life to bless us with more blogging!


Love you!


Take care,



Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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It's good too hear from you Babs, I was only wondering where you'd got too recently, you have read my mind!


It sounds as if your life is still very busy with the radio station but what about the house? Have you finished it yet?


Hope to see more of your blogs again.


Take care



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