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Joelf

Barefut's Blog: Our Precious Kids

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Here's an extract from Barefut's blog:

 

 

Our Precious Kids

 

 

My 15 year old son gave me an unsolicited hug this morning then a few minutes later we had this exchange:

 

He: Do you feel really bad when you don't take your pills?

Me: Yes..........Read More!


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Barefut,

 

I really love this blog. It is very touching.

 

You are obviously doing a tremendous job of raising sensitive, caring children. Have you ever wondered if illness has made you a better parent, in some ways? Because it struck me that your son is feeling compassion for you and trying to understand how you feel, which is not always the usual way in which teenagers are prone to think.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I, too, was moved by your blog, Barefut; any time our children respond as your son did, showing concern/caring, it's special.

 

I also know, in my own experience, that many of my kin are afraid to ask, for fear of what I may tell them; Their thought: If I don't know, I won't worry.

If I'm asked specific questions, I answer appropriately; If vague questions, I answer this way: I'm not doing bad for the shape I'm in! ;)

Most of us so appreciate concern demonstrated (in some way) by those we love; My son (who will be 38 in a few short months) will call once in awhile and say, "Hi Mom, how you doing? I just wanted to call and see how you guys are...." From him, that's GREAT, because he's VERY quiet, so that is QUITE demonstrative!" Yet, if I were to ask him for anything, he would be RIGHT there! I feel the love he has for me and don't doubt, that for a minute! :)

 

When I read your blog, it also took me back to when a grandson was 9 and I was fairly new to Scleroderma; he was looking at me and at my hands and he asked, "Gramma, do your hands really hurt?" I smiled at him (TOTALLY caught off-guard by this question from a 9 year-old boy) and answered, "A little, but they'll be okay, Sweetie." He said, "Hmmm. Can I touch your hands?" I said, "Sure you can", moved by the love I was feeling from him and for him. He carefully touched the areas he saw changes in, and asked if that hurt me while he touched them and I told him he wasn't hurting me at all, smiling.

That exchange really surprised me too because he also is very quiet, as a rule, still at the age of 22 :)

 

As "they" say...Out of the mouths of babes :emoticon-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I think we're going to pass a new guideline around here, that it is welcomed to blog in response to a blog. :yes:

Susie, I loved your response to barefut's blog. I think it is another blog in its own right. :terrific:

 

I think this thread should go in appreciation to all the mothers, all the grandmothers, all the children, and all the grandchildren and the wonderful ways in which loving kindnesses are sometimes shared in response to scleroderma.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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