• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
chockers

Tighting of skin around bra area

12 posts in this topic

Hi,

Round my bra area it has become sore.    There's nothing to see, no thrush, no spots.   The skin looks fine to me, but it's sore to touch and wearing a bra is uncomfortable.

 

Doctor said not to wear an under-wired  bra. Ha ha! I am child size, tiny, with big breasts 34E, tiny back, tiny shoulders.   Only one make fits me and I can go though shops trying on loads being fitted.  The pull on sort you see in magazines and TV don't fit.  They don't hold me up, sports bras hurt. Most bra straps go past my shoulders, except one make.

 

Doctor says it's the scleroderma around the bra area making my skin tight so my bras are uncomfortable.

 

Christine

Share this post


Link to post
Share on other sites

Hello Christine

 

Many women find problems with bras once they have scleroderma, for me it's the pressing over the gastric area that's a no-no and many find this is their problem, painful rib cage is another.

 

You'll have to find an alternative such as a camisole with support in it, maybe not ideal but if you're indoors let the girls be free and easy! Maybe not the most comfortable with the lack of real support but which is worse, this or your current problem as it may unfortunately be a case of the lesser of two evils. Sorry!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Christine,

 

Sorry to hear you're having problems with uncomfortable bras.

 

I must admit I haven't come across this myself, although when I developed shingles a few years ago it was right under my bust and I couldn't wear a bra for quite a while until the rash went. I was slimmer then and so it didn't really matter, although I tended to be the same shape all the way down (think Olive Oyl, Popeye's girlfriend!! ;) :lol: )

 

Now thanks to taking steroids I have put on a bit of weight but the upside is that at last I've developed a decent cleavage!!!

 

There's always a bonus to most things!! :D


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Jo, there is a definite bonus...or two, to weight gain! Mind you I also think being older comes into play because, as I understand it, when women get older their bust size either increases or decreases. There's always a silver lining! :thank-you-2:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I thought it was where I had shingles because it was in the same place. But doctor said no its the scleroderma  but sometimes with no bra on the skin feels all crunched up like it contracts .

 

I had shingles a while ago. I thought maybe it was the nerve endings playing up but doctor says no, even if it was in same place.

 

So maybe it will be hanging with flat bags down to my belly button. I am big so a black eye might be in order if I can't find something to hold me up. Going to look for those bra vest things that look like a tee shirt.

 

Christine

Share this post


Link to post
Share on other sites

Hi Christine,

 

I don't think there is any good or easy answer to the painful bra situation. I jokingly tell folks I have fi-bra-myalgia, but really, it isn't that much of a joke!


While you are searching for a solution you can live with, here are some of my suggestions.  First, buy some "bra extenders". They are very cheap and you can easily buy them online.  Get a 3-pack.  Then try them on your existing bras, using as much extension as you can get away with (you can string them together).  They might ease the pain just by making your bras too loose, but hopefully not so loose they don't work at all.

 

It might not necessarily be the underwire that you can't tolerate; I have one underwire bra that I can usually tolerate for a short spell for a worthy occasion, if I sit up very straight (any slouching makes it very painful though.)

 

Whenever you are home/alone, let those puppies hang free.  Find a top you can wear that covers most of the disaster area, just in case someone drops by. Try a few different types of camisoles that have a built-in bra.  Do not expect the same level of support you get in an underwire, it simply won't/can't happen, but it should bring things up to the level of socially acceptable. I usually have to sew the straps up a few inches at the shoulders to get them to fit right.


They do have bra-free bras, invented for occasions such as wearing a strapless gown.  I have looked but not tried them because I don't think the stickiness would get along with my sclero-skin.

 

You can also think outside the box, such as using the top part of a two-piece swimsuit if it fits you nicely.  But my best suggestion is to just let those puppy ears droop as low as they need when nobody else is around, because every other solution adds a bit of pain and you probably don't want to exhaust yourself trying to cope with the pain 24/7.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi

 

Just saw your post - better late than never!  I have sore areas around my bra and trunk area, no inflammation but the skin texture is coarser and more raised and is uncomfortable when wearing an underwired bra.

 

I must say I did think it was Sclero-related but that query has always been forgotten off the end of the list when going to Royal Free appointments so thanks!  I also have a large bust and so bra-less or t-shirt type bras are not for me, so we could be starting a trend to let them hang free at home! 

 

Great posting, take care and enjoy the sunshine.

Share this post


Link to post
Share on other sites

Hi Everyone,

 

Just thought I would add my 2 cents worth. I am a big girl so I have so much trouble with finding anything that is comfortable. Recently I resorted to these sport bras that are like a very soft spandex material and  that you can also wear like a tube top. I always buy like two sizes bigger for comfort.

 

Also me and my sister found that a soft tube top makes a good replacement for a bra especially around the house. :emoticon-dont-know: I'm not sure this will be any help but works for me.  

 

Take care everyone!! :emoticons-i-care:


northstarhope* :emoticons-i-care:  :thank-you: 

Share this post


Link to post
Share on other sites

I'm very late reading/posting to your thread, as well, chockers; the "Very Special Names" amanda and Shelley have for our Girls ;)

 

As with you and so many others, I also have major problems wearing bras; it makes no difference who/what/why; While at home, I just don't wear one. Period. I realize some balk at that idea, but I'm MUCH more comfortable without.

 

Adding to this thread any other ideas, I'm unable to do, but I also know that underwise for me is a thing of the past as well (several bras ago)!

 

Take care and I hope you can find resolve somehow.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

It's got better.  GOOD as I have big chest so back in bras .But if I have to find something if it gets sore again and will have a big job.  To be without is awful when you are big .

 

Going to see if I fit into non-wired  I am very tiny with big boobs, full chest  with tiny shoulders. Small back, E cup.

 

So will have to see.

 

Chris

Share this post


Link to post
Share on other sites

Hi Christine,

 

I'm glad to hear that you're not suffering so much discomfort now and I do hope you can find a comfy, non wired bra to fit you.

 

You may have to go to a specialist lingerie shop which could work out a little expensive, but it would be possibly be worth it to have comfortable underwear!! ;)

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I have had real bra problems ever since my scleroderma started 4 years ago.
I found it most comfortable to just go bra less at home. Of course this meant that trampolining was out of the question.
These days I need to wear a mastectomy bra which I have found  most manageable by going up a couple of  sizes and reducing the cup size. Often I also add a bra extender into the equation.
However, when at home I usually revert to no bra at all.
Glorying in my unitit status.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0