goodluckkitty

Proper Introduction

23 posts in this topic

Hi Miocean and Shelley,

Shelley, I am going to challenge you on this one! Amanda's famous quote pre-dates 2011.

In a June 2010 post I wrote "While I was on dialysis I would read Amanda's posts about how there is life after scleroderma..."

I was on dialysis from 2004 to 2010 and remember Amanda saying something like "There is life after scleroderma. It might not be the life you expected..."
Like Kaytee this sustained me more times than I can say and helps me get through my days.

I did advanced searches on the forum using different criteria under both Amanda and myself and the furthest back I can find is my 2010 post. Amanda must have written it before that so the challenge is on to find the original post!

miocean

 

Hi Miocean,

 

So you're saying Amanda was just quoting herself in 2011? :emoticon-dont-know:

I'm sure you'll find a lot more inspiring gems from her if you dig back in the archives.  And maybe you'll even track down the original post.

I promise to do a Sclero Happy Dance for the Winner of the Amanda Quote Contest (AQC, as we call it.)

 

:emoticons-group-hug:

 

 

 

 

Ah-ha, I've found a quote from Amanda dated 23rd September 2009

 

 

What is worth bearing in mind is that there's still good life to be had after scleroderma it's just that life looks different from what we thought it would but that's not always a bad thing. My life is completely different from what it was but I still have a great life. We have information on this site regarding emotional adjustment that you might find helpful. Whatever the change to our lives may be we need to adjust to it and that takes time.

 

Maybe I'll be the winner of the AQC!! ;) :lol:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Horsemum

 

Welcome to the forums! My sympathies with the ulcers, I have them on my feet but they're no less annoying or painful, mind you they don't interfere with typing, that would be weird!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Ladies

 

The quotes! Where'd they come from?!

 

Seriously, I think they're all still accurate and true even though things have become more difficult year on year.

 

I still think my life is a good one with things to enjoy, last year that may have been a shopping trip and this year it may be lying in bed listening to a favourite radio programme because I can't get out of bed. I have had to adjust my horizons to enable myself to get as much pleasure out of being stuck in bed listening to the radio as I did from shopping but the alternative...

 

Frustration, disappointment, gloom and doom...well maybe not that bad but who doesn't like a bit of drama! Anyways, after feeling all those things I moved on and made the adjustment to my horizons so I can now enjoy things differently, the radio programme that's replaced the shopping trip for example.

 

Maybe I am easily pleased but I just don't see a choice!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Announcing announcing announcing -- the WINNER of the Amanda Quota Contest (AQC) is none other than:

 

Jo Frowde!

 

And for that, I will do my promised Sclero Happy Dance! 

 

:emoticons-line-dance: :terrific: :emoticons-line-dance: :jump-for-joy: :happy-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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You are just too clever Jo Frowde!!   Whenever I try to look back for something, ANYTHING! I just end up going around in ever decreasing circles,

 

Congratulations to you, and thank you for being there for all of us.

 

Judyt

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Thanks for the award, Shelley!   :high-five:   

 

:emoticons-line-dance: :happy-dance: :emoticons-line-dance: (This is rather like the Oscars, except that I shan't be bursting into tears!! ;) :lol: :lol:)

 

 

 

Seriously though, I wouldn't be able to win this without Amanda's wise words which I know are definitely a source of help and inspiration to all our members. Her courage and the bravery she shows when this bizarre disease throws up more horrible and painful complications for her have made me feel humble many, many times. 

 

 

Amanda, many thanks to you from me and everyone else who is fortunate enough to read your words!! :emoticons-thankyou: :you-rock:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Horsemum,

 

Welcome. I am sorry you are dealing with digital ulcers. That is one issue I haven't had to deal with but can imagine the pain and difficulty. I hope they heal for you.

 

Jo,

 

Thank you for finding the origin of the quote. And Amanda, thank you even more for your quote. It is definitely true that your life changes after scleroderma...and changes...and changes...unfortunately for many of us, just when we adjust to one thing another comes along, or we find things moving along rather smoothly for a while and then sclero decides to show its progressive side again.

 

My thoughts are that we have to find joy in simple moments and peace in knowing we are doing the best we can wherever we are in our journey with this disease.

 

miocean


ISN Artist

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