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Barbra1960

Natural remedies

6 posts in this topic

I am new here and I am interested in what you all do for your morphea patches as far as, itching and helping them heal using essential oils and etc. So would anyone have any suggestions that they use to share.

 

I was using a brand name cream and wash samples which helped but they are wanting a lot of money for their stuff. Thank you for great info.

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Hi Barbra,

 

Welcome to Sclero Forums! 

 

As it happens, there are no proven natural remedies for morphea (no diet, creams, essential oils, etc.) although on the internet there is no stopping anyone from making outrageous claims for all sorts of cures for everything...and there are thousands of purveyors of false hopes, more intent on parting us with our money than actually curing our disease.  Especially tricky is that often morphea will fade or even go away on its own accord within three to five years, even without any treatment at all -- and it is for that reason that many people are convinced that their cream/oil/vitamin/medication/food or whatever was the "cure" they were seeking.

 

However, in recent years they have found that UVA1 Phototherapy is a proven treatment for morphea.  UVA1 is similar to a tanning booth, but the lights are a different (and more intense) wavelength.  The thing to do is to consult your doctor (preferably a scleroderma expert, of course) and ask for a referral to a dermatology center that has UVA1 phototherapy equipment.  (This is NOT to be confused with UVB lights or with lights for seasonal affective disorder or with full spectrum lights; this is not a do-it-yourself project of any sort. And centers with UVA1 are still pretty hard to find in most areas.)


UVA1 is about as close as you can get to "natural" yet still be effective as a treatment for morphea (and other types of scleroderma as well.)  I hope you find this info a little bit helpful.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Barbra,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with Morphea and I've included a link from our medical pages on Treatments which I hope you'll find helpful.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Barbra

 

Apologies for belated welcome!

 

I also have morphea as well as systemic scleroderma and I use an emollient cream and one with urea and lauromacrogolsin it for the morphea patches. I have over 20 on my thighs some are as big as my palm and they itch if they get dry.

 

I confess to not being much into essential anything so I can't help you there. I did once add menthol to an emollient cream but moved onto ointments as they are thicker and more substantial. Having said that the best cream I use is the one with has urea and lauromacrogols in it. It's not oily and leaves sort of a finish on the skin so it does not immediately become dry again but remains softened and moist.

 

Hope this helps and how are you getting on?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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